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A Letter to the Newly Diagnosed Myasthenic

No one will ever fully understand what you go through, but I am pretty sure you have figured that out already. People are going to surprise you in the best and worst of ways, but you will grow from it. Unfortunately, you have been dealt a poor hand of health —…

How My Port Empowered Me

Medical science is ever evolving. There are more diseases being discovered, advances in medical technology, and changes in perceptions of medications and their effects on the human body. Humanity has definitely come a long way since believing that drilling a hole in a patient’s skull would rid them of evil…

The Joy of Being Alive

I was never gifted with numbers, but I always felt confident when it came to languages. When my emotions are too overwhelming to comprehend, I look for answers in written work, or I simply start writing down how I feel. It helps me deal with big emotions and determine why I…

Why Don’t We Get to ‘Ring the Bell’?

One of my closest friends, a fellow MG warrior and mom to an MG teen with juvenile arthritis, told me tearfully one day about how her daughter never got to “ring the bell.” You see, her daughter’s primary juvenile arthritis (JA) treatment was chemotherapy infusions administered in an infusion suite…