Tracy Hancock, who has MG, shares her tips on how to prevent total fatigue.
Transcript
Stop as soon as you realize you’re doing too much or getting tired and need to rest. That’s the main thing. I also plan my days accordingly. I can no longer shower every day, so I have to plan around it. I can’t shower on a day when I need to go out; I can’t do both on the same day.
It makes social interactions very difficult because I stink a lot of the time. But, you know, it’s about planning smarter and figuring out how much I can get done in a day—which is very difficult, especially if you’ve been extremely independent.
Now it’s about minimizing my tasks to one, maybe two a day. And it’s not just about what I’m physically able to do; it’s also about how much mental capacity a task will take. I’ve learned that mental effort drains my energy, too, and that can cause a physical crash. If I have to concentrate too hard, if there’s too much happening with the lights, or if there’s too much noise, it drains my energy. Sometimes, very quickly, I’ll feel my muscles start fatiguing. I’m kind of like, “Well, I’m not even walking. I’m not using my arms. Why are my muscles fatiguing when it’s just noise and crazy lights around me?”
