Sarah Bendiff, an MG patient advocate, shares how she explains challenges to her doctor and works toward solutions that could improve her daily life. Read her column, “My Bitter & Best Friend: MG.”
Transcript
Well, I use the technique that we use at work, so I give a feedback in parts. I start with how it makes me feel, how it affects my daily life, and I try to add some suggestion, and then ending with how it would really change my life: having a solution to that.
For example, when I went to my doctor looking for solutions to writing, because I do have a lot of trouble writing more than one paragraph, I was like, “During an exam, I faced a struggle …” So I started with a storytelling, and I felt frustrated — added stress to my stress. And then, the day after, I just had a flare-up, and my whole MG situation got worse.
So maybe we can try — I don’t know — some exploration to my hand, try to find another problem, and it would really help me manage my life. Or at least give me an answer like: This is a problem that doesn’t have a solution, so I can get my mind to that and move on.
Maybe ask for assistance while writing, or I get my laptop.
