'Fine' isn't enough:
Planning for flourishing with MG

Why ‘control’ in MG care may miss what matters most

Nizar Souayah, MD, explains why the concept of “control” in MG can be misleading when assessing treatment success.

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About the series

We listened to the conversations happening across the MG community to uncover the questions and challenges that matter most. In this video series, community members share their personal journeys, hard-won wisdom, and advice for navigating life with this condition. These are voices of experience from real people who truly understand.

Episodes

Why ‘control’ in MG care may miss what matters most

Nizar Souayah, MD, explains why the concept of “control” in MG can be misleading when assessing treatment success.

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The progression risks of undertreated MG

Nizar Souayah, MD, explains how undertreated MG can progress, impact daily life, and lead to more intensive treatments and side effects.

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Rethinking rest and rebuilding strength with MG

Sarah Bendiff reflects on what she wishes doctors paid more attention to.

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Driving for urgency in MG doctor appointments

Tracy Hancock shares practical advice for getting doctors to take disease symptoms seriously.

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Exiting MG doctor relationships gracefully

Tracy Hancock shares how she approaches relationships with her doctors who don't meet her needs.

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Why neck weakness is a serious MG warning sign

Hesham Fawzi shares why neck weakness is the symptom he never ignores.

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