The Whispered Roar
— Shawna Barnes

Snow in September? Last week I got a new tattoo. The session was my husband’s gift for our anniversary this year. I told the tattoo artist that I wanted something to mark…

When living with myasthenia gravis (MG), sometimes even the simplest tasks, such as choosing a hairstyle, can feel like climbing Mount Everest. Today, I’m diving into the world of hair — short and…

I’ve never been one to be afraid of insects of any kind. Growing up as a farm kid and then becoming mom to a boy helped rid me of all “ickiness” factors of the…

I’m not ignoring you. I’m just ignoring the chance to talk to you on the phone. Cue phone ringing beside me. I look at caller ID and identify that it’s not an emergency. *send…

I’ve never understood how other people with myasthenia gravis (MG) can live in warm climates. One of the things that exacerbates my MG symptoms the most is heat. This summer, I’ve taken…

What’s the first thing that comes to mind when someone tells you they’re “doing the carnivore diet”? If you’re like my husband, who works in the fitness world, it might just be an…

“Review scientific articles only and summarize the content to explain what treatments are available for a person with myasthenia gravis experiencing breathing difficulties due to diaphragm and intercostal weakness.” This was the…

The past 12 months have been eye-opening for me, bringing opportunities to accept hard truths about my mortality and independence while living with myasthenia gravis (MG). Both of my husband’s parents passed…

The first time I heard those dreaded words, “You have myasthenia gravis” (MG), I felt such relief. That was quickly followed by an intense desire to learn everything I could about the condition.

“Is there anything I need to know to help you in an emergency situation? What does an emergency look like for you?” A client of mine recently asked me those questions as we chatted…

It’s crazy to think that I’m approaching my 30th month of writing my column, “The Whispered Roar,” for Myasthenia Gravis News, as well as my seventh year of raising awareness for…

Because of myasthenia gravis (MG), not only do I have to keep track of the food I eat, the amount I talk, and the schedule for my treatment plan, but I also…