The Whispered Roar
— Shawna Barnes

Living with myasthenia gravis (MG) means learning to coexist with a body that doesn’t always follow predictable rules. One minute I feel steady, capable, and even hunky-dory. The next, my muscles wave a white flag, and the simplest task feels like climbing a mountain in wet boots. That unpredictability…

Living with myasthenia gravis (MG) is already a full-time job, and not the cushy work-from-home kind with pajama pants and flexible hours. MG is the kind of job that keeps changing your schedule without warning, hands you tasks you didn’t train for, and occasionally leaves you flat on your…

If you’re shopping for someone with myasthenia gravis (MG), choosing the right gift can feel a little like trying to guess what kind of weather you’ll get tomorrow — unpredictable with a chance of “my body said nope.” MG is a rare condition that affects muscle strength, so…

Living with myasthenia gravis (MG) can feel like starring in a mystery movie I never auditioned for. One minute, I’m moving just fine, and the next, my muscles behave like someone flipped my power switch to low. Anyone with MG knows this rhythm all too well, but my road…

Most folks have never heard of myasthenia gravis (MG), and honestly, I don’t blame them. It’s a rare autoimmune disease that even some doctors initially miss. MG plays tricks with the connection between nerves and muscles, kind of like static on a phone line. One moment, the message from…

When November rolls around, you start to notice more mustaches sprouting across faces — some fuzzy, some patchy, some magnificent. They’re part of the Movember movement, a global effort to raise awareness for men’s health, especially mental health, suicide prevention, and cancers that affect men. But when I see…

If there’s one lesson the Army drilled into me that still applies today, it’s hurry up and wait. I thought I’d left that phrase behind, along with my combat boots and field rations, but living with myasthenia gravis (MG) proved me wrong. That old idiom fits perfectly in…

Let’s be honest right out of the gate: Grief stinks. It’s messy, exhausting, and sneaky. And if you live with a chronic illness like myasthenia gravis (MG), grief isn’t just about losing people you love; it’s about losing versions of yourself you never thought you’d have to say goodbye…

Living with myasthenia gravis (MG) means I’ve spent more time in hospitals and clinics than I ever imagined I would. Most of the healthcare providers I’ve met have been kind, compassionate, and respectful. They’ve held my hand through scary procedures, explained complicated medical jargon in ways I could understand,…

Note: This column describes the author’s own experiences with the dietary supplement huperzine A. Not everyone will have the same response to it. Consult your doctor before starting or stopping a therapy. Before I got my diagnosis of myasthenia gravis (MG), I had a whole lot of questions…

Dear myasthenia gravis (MG), This note isn’t easy for me to write, but I think it’s time we break up. I could be cliché and say it’s not you, it’s me. But let’s be real, you’re the star of the show, my dear myasthenia gravis. So it is, unfortunately…

This column describes the author’s own experiences with pyridostigmine bromide. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. A little-known fact about yours truly: When I was enlisted in the U.S. Army as a combat medic, I was studying…