When I was diagnosed in 2004, it was a shock to my entire family. We had never heard of this disease and had no idea what it meant for my future. I had to take a year off school due to hospitalizations, treatments, and a thymectomy. I felt like…
Positively MG – Megan Hunter

I started coughing last week. Really coughing. The kind that hurts your ribs after a while, and wakes you up during the night. It’s the kind of cough that makes people move away from you in public as they whisper behind their hands. I had flown to another…

Recently, I was chatting with some of the other ladies in my support group who have been on a similar path as me — constant hospitalizations and relapses. They have also been through the heartbreak of having yet another treatment not work and the uncertainty of their future, health-wise. We…
You never imagine that your life could change in an instant. You never imagine that your “normality” can get turned upside down and spun around like it’s been let loose in a washing machine. You never imagine that you will be told by doctors that they don’t know what more…
Recent Posts
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- One troubling aspect of chronic illness is when I find myself losing empathy
- Most MG patients in US start therapy without lab confirmation of disease
- Even with myasthenia gravis, ‘you still have to get up in the morning’
- New patient registry aims to collect real world evidence on MG in US