The Myasthenia Gravis Foundation of America (MGFA) has partnered with Alira Health to relaunch a patient registry for people with myasthenia gravis (MG) that “capitalizes on technological advances,” the nonprofit announced. The initial registry was launched in 2013. The rebranded MGFA Global MG Patient Registry is…
Sixty-one days, 8.7 weeks, two months, or one-sixth of a year — that’s how much time I spent at medical appointments in 2022. When I stop to look at the numbers, it’s no wonder I’ve been experiencing medical burnout. This type of burnout is real and brings a…
“The older people get, the more positive they are about aging and the more adaptive they are to their limitations. Social science tends to define old people by their disabilities. But people don’t define themselves that way.” — Laura L. Carstensen, founding director of the Stanford Center on Longevity, as…
MuSK-CAART, an investigational cell-based therapy being developed to treat myasthenia gravis (MG) patients with anti-MuSK antibodies, eliminated disease-driving B-cells in a mouse model of the disease, a study showed. The findings, some of which were reported previously at a scientific conference, supported Cabaletta Bio’s request for a…
Treatment with an antibody targeting the interleukin-23 (IL-23) protein reduced symptoms and eased inflammation in mouse models of myasthenia gravis (MG), a study found. Evidence suggested the antibody lowers the activation of T-helper 17 (Th17) cells — a cell family implicated in MG and other autoimmune diseases — in…
Neon green snot runs out of my nose and down the back of my throat. A cough sounds like I’ve been smoking two packs of nonfiltered cigarettes a day. Exhaustion hits a bit differently than it normally does. My eyes are sunken. Crap. I’m normal people sick. Defining degrees of…
Ultomiris (ravulizumab-cwvz) has been approved in Canada to treat adults with generalized myasthenia gravis (gMG) who are positive for antibodies targeting the acetylcholine receptor (AChR), the most common type of MG-causing antibody. The announcement came less than a year after Ultomiris was approved for the condition in the U.S., and…
Researchers have identified clinical factors that increase the risk of a post-operative myasthenic crisis (POMC) for patients with myasthenia gravis (MG) who have surgery to remove the thymus gland. Among the risk factors listed are more severe MG with respiratory muscle involvement, pre-operative use of a high dose of pyridostigmine…
“Red light!” “Green light, … red light!” Are you smiling as you remember playing Red Light, Green Light in the schoolyard as a child? I have a smirk on my face as I sit here writing it. The other morning, while scrolling through social media and waiting for my medications…
Adults with myasthenia gravis (MG) have elevated levels of protein fragments released from T follicular helper (Tfh) cells — an immune cell type involved in the development of autoimmune conditions — in their bloodstream, a study reported. According to researchers, these results suggest that molecules associated with Tfh cells…
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