Forum Replies Created

  • S. R. Prasil

    Member
    August 2, 2023 at 4:23 pm in reply to: Weight Loss and MG

    MG did not seem to make a difference in weight, but my weight seems to make a difference in MG symptom/severity. A 30 lb loss three years ago was simultaneous to an improvement. After gaining that back, I have declined some. Three days ago, I began working towards losing again and eating a better group of nutrients in general. Has not been enough time to tell yet, but I will keep you posted.

     

  • S. R. Prasil

    Member
    January 30, 2023 at 2:02 pm in reply to: Probiotics for MG

    https://pubmed.ncbi.nlm.nih.gov/29341125/

    Regardless of whether probiotics wind up as part of our standard protocol or not, there are so many studies of how helpful they are to us even when everything seems rather ‘normal’. The link I attached shows many studies specifically on MG and probiotics and/or autoimmune neuro issues and probiotics. So—I have added probiotics to my regime.

  • S. R. Prasil

    Member
    August 2, 2023 at 4:28 pm in reply to: Tired, all the time? Whats happened?

    Double vision is a bummer! LOL How are you doing with quitting vaping? Your lungs are so important! As an ex-smoker (33 yrs off), I remember how hard it is to quit. I still dream about having a cigarette ever so often. Hang in there!!!

  • S. R. Prasil

    Member
    February 16, 2022 at 9:09 pm in reply to: Do you have Seronegative MG?

    Yes.

    Short version- 3 doctors (1 neuro, 1 neuro muscular specialist, and 1 hospitalist) have told me I have clinical MG and given positive diagnosis based on symptoms. All tests come back negative with EMG showing only slight chance of MG, which 3 specialists have said is so little they are willing to definitely say that I do NOT have MG.