[Alan]

Brain fog is a standard for me on a daily basis, more just before my next IVIG treatment

[Joe]

Hi Alan. Funny you should mention that.i was just wondering if anyone has had brain fog.i would be doing something and my brain just stops .I have to sit there for a minute then it will come to me.i have ocular mg and seronegative

[George Kesterson]

Brain fog, it makes what little brain I have left hard to use. Most days in the afternoon, some days worse than others. I can hardly write with a pen/pencil because of the fog and shakes. Signing a document is very difficult. Trying to concentrate and type today is also difficult between the fog and shakes.

[standia]

Hi, I saw your post about brain fog and was wondering if you or anyone else have found any medications that will reduce or eliminate brain fog. Prescription or OTC????

[Jodi Enders]

Managing brain fog related to MG or other conditions can be challenging, but some strategies might help. Regular sleep patterns, hydration, and a balanced diet focusing on vitamins and minerals can significantly contribute to cognitive clarity. Additionally, engaging in mental exercises or activities may help keep your mind sharp.

You could consider cognitive behavioral therapy with a therapist specializing in chronic illness, which can provide strategies to cope with brain fog.

– Jodi, Team Member

[miche]

My memory was affected by MG but became worse after catching Covid 2 months ago. I hope it doesn’t get worse with time.

[Mama]

Yes, I have brain fog and fatigue. Sometimes coffee helps, but no one has suggested medications. It is very frustrating and slows me down considerably. I try and push through, but it is not easy.

[DD]

I’ve tried caffeine but then that causes my anxiety to ramp up. I used to think I was fairly sharp but now a lot of my conversations with people are me searching my brain for the right word I’m trying to say and having trouble articulating my thoughts (that’s if I can get them in order and I don’t slur my words) and people lose patience and stop listening. It’s very frustrating.

[paul spychalski]

Sorry to hear that but I have all those things too!

[S. R. Prasil]

Absolutely! Sometimes it comes on gradually, others-wham! When I have other symptoms like slurred speech and/or balance and foot drop issues, people may think that I am drunk or have had a stroke. On a few occasions over the years, it has been bad enough to forget where I am or how to get to where I am going for a few minutes

Worry/stress makes it worse. If it is very mild brain fog, a short break and a caffeinated soda help. I make sure to keep my blood sugar in balance, as strong dips make fog worse. That means staying away from refined sugar and simple carbs as much as possible.

If fog has progressed too far for a brief sit down and quiet to help, I just take a nap. Sometimes my day just has to stop before it gets started going.

Does MG interfere with my work life, ADL, and social activities? Duh! But, in my case, everything was worse during first two or three years after diagnosis, then has gradually, slowly improved over the past four. Sometimes I wonder how much of my improvement can be attributed to my learning better ways to deal with MG-both physically and emotionally. I gauge how far to push things and try not to overdo it. And I certainly do not worry about other people’s opinions of what they think I can and cannot do. When I get tired, I stop. That may be for 15 minutes, or it may be for a day or more. Other people don’t live in my skin. Seriously, I think learning what I can control and not stressing over what I can’t has helped more than any of the meds I took. Getting into better general health has also played a part. Doing what I can, when I can, and trying not to compare it to what I ‘should’ be able to do is a hard lesson, but makes a major major difference. Best wishes!!!

[mik]

I get brain fog quite often and the more I have to read the more fatigue I get.