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Mark Cox replied to the topic Pyridostigmine Side effect or allergic reaction? in the forum Healthcare and Myasthenia Gravis 1 week, 2 days ago
I’m 62 years old and on 240 mg Pyridostigmine combined with 200 mg of azthroziaprine along with Vyvgart infusions. Seems like high doses compared to the other replies. But in short I have had no side effects for over a year now. But…I have changed eye glass prescriptions 4 times in less than a year getting progressively worse in both eyes for dis…[Read more]
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Mark Cox replied to the topic Have You Had Eye Surgery to Help Your Vision? in the forum Healthcare and Myasthenia Gravis 1 month, 1 week ago
I’m 62 and Like most my MG started out with double vision a year ago and I used the pixel glasses for a short period until the Vyvgart kicked in to clear my double vision.
My concern now is that my vision has changed 4 times in the last 9 months mostly In the right eye mostly which includes new prescription eye glasses each time and getting e…[Read more]
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Mark Cox replied to the topic Vyvgart side effects in the forum Healthcare and Myasthenia Gravis 1 month, 1 week ago
I’m 62 and was diagnosed 1 year ago with full blown MG symptoms that all exposed themselves over a two week period..
After 3 months of trying to find a a doctor to fully diagnose my MG, they started me out first on an IVIG of <span class=”s1″>Gamunex that work very well for me compared to Vyvgart. I Felt much stronger and less anxious from Ga…[Read more]
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Mark Cox replied to the topic Do You Work? Has It Been Impacted by MG? in the forum Working/Careers and Myasthenia Gravis 1 month, 2 weeks ago
I’m 62 years old and I’ve only had MG a year now with all major symptoms via double vision, chewing, respiratory, speech and strength loss etc. I was in relatively good physical shape a year ago but my physical and some of my mental speech and concentration health have been affected. I Am a VP product line manager in the oilfield that requires 24/…[Read more]
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Mark Cox replied to the topic Breathing problems in the forum About Our Forum/Welcome Lounge 4 months, 1 week ago
I’m a 62 year old male and was finally diagnosed with MG about a year ago after experiencing some of the normal Vision, muscle weakness and swallowing issues and seems I have developed all the MG symptoms since but the most concerning or most noticeable symptoms are my breathing and muscle weakness’s… I still travel a lot for my job and walki…[Read more]
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Mark Cox replied to the topic How Would You Rate the Quality of Your MG Care? in the forum Healthcare and Myasthenia Gravis 4 months, 2 weeks ago
I’m 62 and have only had MG a year now and was diagnosed with the majority of MG symptoms so I have seen many doctors in a short time but overall it still feels like being just another sheep in the band-aid lines with most of the medical professionals that I’ve come in contact with… The medical field as a whole still doesn’t know or underst…[Read more]
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Mark Cox replied to the topic Describe Your Journey With MG in 3 Words in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 5 months, 1 week ago
“It’s always something”
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Mark Cox replied to the topic Describe Your Journey With MG in 3 Words in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 5 months, 1 week ago
Challenging, Unpredictable and Humbling
“ Just Another way to say Wack-A- Mole”
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Mark Cox replied to the topic Hey all! in the forum Additional Resources 6 months ago
Sorry bud but you seriously need to get a second or third opinion, I’m 62 and have had full blown MG for over a year now with mostly the exact symptoms that you are experiencing… Took 3 months, several doctors and test to narrow mine down to MG… Best of luck finding the right doctor to narrow it down to MG or some of the similar type of disea…[Read more]
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Mark Cox replied to the topic Misdiagnosis Before MG in the forum Healthcare and Myasthenia Gravis 6 months, 2 weeks ago
Yes, it took multiple blood test to finally narrow my diagnosis down to MG… Along with cat scans, multiple MRI’s to isolate possibilities of damaged eye muscle issues, Thymus and other diagnosis possibilities. Just a note of interest when I went to the second eye specialist for blurry vision, he let me know that he couldn’t find anything in the e…[Read more]
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Mark Cox replied to the topic Misdiagnosis Before MG in the forum Healthcare and Myasthenia Gravis 6 months, 3 weeks ago
My MG took 3 1/2 months to diagnose starting with blurred vision at the eye doctors, then a specialist eye doctor, then to a respiratory doctor for an upgraded respiratory inhaler for my breathing issues etc. Finally I pretty much diagnosed my self by searching the internet. I was somewhere between MG, ALS, MS, AIDS and a couple other close…[Read more]
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Mark Cox replied to the topic Actual Results using Vyvgart in the forum Myasthenia Gravis Research, Scientific News, & Clinical Trials 10 months, 4 weeks ago
I’m 62 years old, male and still struggling with Vycart compared to Gamunex. I rapidly had about every MG system come on in October last year for the first time i.e. Double vision, chewing, eye drooping, fatigue and respiratory issues etc. Like most it took 2-3 months to fully diagnose MG after Eye doctors and everyone else… After being dia…[Read more]
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Mark Cox became a registered member 1 year, 2 months ago
Hello, Mark! I am glad you finally received a diagnosis. We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and…[Read more]
Hello. I’m seronegative. This first time to log on still try to figure out how this site works.
I am 86 I was given diagnosis in 2017
But unable to find a Dr.the one I had retired. Since than I’ve been searching. I get ivig treatments every three weeks.
Local Dr will only have another Dr write orders than she will order them.
I had a rea…[Read more]