@jodi-enders
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Jodi Enders started the topic What Forms of Validation and Support Do Your Loved Ones With MG Respond Best To? in the forum Caregivers, Family Members, and Partners of Those with Myasthenia Gravis 2 days, 21 hours ago
Partners, family, and friends of those living with MG: I’m curious how you communicate.
What forms of validation and support does the one you care about respond to best when you tell or show them through action?
I appreciate it when others acknowledge they understand and are willing to accommodate or help if I need it, rather than receive q…[Read more]
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Jodi Enders posted a new activity comment 1 week ago
Hello, Winston! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself…[Read more]
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Jodi Enders posted a new activity comment 1 week ago
Hello, Ken! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself with…[Read more]
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Jodi Enders posted a new activity comment 1 week ago
Hello, Lope! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself with…[Read more]
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Jodi Enders posted a new activity comment 1 week ago
Hello, John! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself with…[Read more]
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Jodi Enders posted a new activity comment 1 week ago
Hello, Joe! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself with…[Read more]
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Jodi Enders posted a new activity comment 1 week ago
Hello, Alex! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself with…[Read more]
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Jodi Enders posted a new activity comment 1 week ago
Hello, Crystal! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself…[Read more]
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Jodi Enders posted a new activity comment 1 week ago
Hello, Haroon! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself…[Read more]
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Jodi Enders posted a new activity comment 1 week ago
Hello, Joyce! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself with…[Read more]
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Jodi Enders posted a new activity comment 1 week ago
Hello, Lynne! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself with…[Read more]
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Jodi Enders posted a new activity comment 1 week ago
Hello, Keith! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself with…[Read more]
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Jodi Enders posted a new activity comment 1 week ago
Hello, Lisa! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself with…[Read more]
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Jodi Enders posted a new activity comment 1 week ago
Hello, Roy! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself with…[Read more]
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Jodi Enders posted a new activity comment 1 week ago
Hello, Bobbi! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself with…[Read more]
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Jodi Enders posted a new activity comment 1 week ago
Hello, Michael! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself…[Read more]
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Jodi Enders posted a new activity comment 1 week ago
Hello, Michael! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself…[Read more]
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Jodi Enders posted a new activity comment 1 week ago
Hello, Sawyer! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support. I was diagnosed similar timeline…[Read more]
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Hi, I had MG bulbar since 2013 when I was 62. Luckily, I was diagnosed very early so I was able to receive medication in a few days after the first symptoms.
I had Prednisolone but the side effects were diabetes, so I prefer not to take this treatment.
In order to avoid the side effects that Mestinon causes I take a 20mg capsule of Omeprazole an…[Read more]
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Jodi Enders posted a new activity comment 1 week ago
Hello, Marti! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself with…[Read more]
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Jodi Enders posted a new activity comment 1 week ago
Hello, Jerry! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself with…[Read more]
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Thank you so much! Thrilled to be part of this community.. sad we had to meet under these circumstances.. but looking forward to future friendships! And not feeling so alone with this.. I will definitely look at it all. ☺️ Thank you again.