• Losing balance

    Posted by cupcake on February 4, 2025 at 9:18 am

    Hello there my fellow MG patients, I would like to know if anyone suffers from balance. I have found recently that when I’m walking or going to stand up I loose my balance. It becomes embarrassing especially at work when I walk into door frames instead of going through the door. I apologize for the text.

    miche replied 12 hours, 47 minutes ago 10 Members · 10 Replies
  • 10 Replies
  • Living

    Member
    February 4, 2025 at 2:13 pm

    I’ve been having some balance issues also, just seeming to step wrong. I’m 77 years old though and this is a relatively new symptom so it may be aging rather than MG. Over the years I have had a few scary episodes of vertigo though which of course causes huge balance issues and I have wondered if MG could play a part in that. No vertigo now for a couple of years and I think my doctors just assumed it was a middle ear issue. Whether major, like vertigo attacks, or minor it is concerning and I hope you’ll be able to get a good answer.

    • Joe

      Member
      February 4, 2025 at 3:29 pm

      I am seronegative and I am on ivig octagam.i also have balance issues.feel like I’m walking on a boat all the time.it never goes away.i take meclizine when it bad and seems to help a lot.

  • Larry Boggs

    Member
    February 4, 2025 at 2:21 pm

    I have balance issues mostly when I bend over I seem to want to continue forward though I have never actually done so. I am a veteran and my VA doctor prescribed 15 sessions of balance therapy because I had fallen once and because of my MG. My first session was a balance evaluation based on a prescribed criteria. The results were I preformed better than individuals ten years younger (I am 79). We did two more sessions were I did balance exercises. My conclusion and that of the therapist was I didn’t need any more.

  • Kent Estes

    Member
    February 4, 2025 at 3:08 pm

    I have balance issues as well. Mostly when standing from a siting position. Humor helps …. my brother and I were at a restaurant and, in between courses I got up to go to the restroom. Of course I was unsteady on my feet for the first few steps. The diners next to us asked my brother if I was drunk. He replied that I was a little impaired and I was his ride home! Levity helps every difficult moment.

  • Dawn R

    Member
    February 4, 2025 at 3:11 pm

    Definitely an issue! I agree that humor helps a lot!!

  • Winston D Roden

    Member
    February 4, 2025 at 4:34 pm

    Hello Friends:

    Yes definitely. I was diagnosed in Feb. 2019 and have had vertigo and unsteadiness ever since. My DIL says I look like a little ole drunk man walking! I have blamed it on the medicine I have been on but I am not sure that is everything. I also have COPD and Interstitial Lung Disease and use a nebulizer and flutter valve four times a day for the medicine and to exercise my lungs. It only takes 10 minutes or so the get the medicine in my system but I continue with exercise for about 30. I developed these problems with my lings after the neurologist decided to take me off IVIG and try Ultomiris. The most common side effects of Ultomiris are upper Respiratory Tract Infections. I have been susceptible to respiratory tract infections all my life and then I smoked as a young person. I was admitted to the hospital with severe lung failure about September 2023 and diagnosed with COPD and Interstitial Lung Disease, both of which the doctors said had no cure. My treatments leave me very unsteady, but I am trying to strengthen myself.

  • David S

    Member
    February 4, 2025 at 9:43 pm

    Hi all –

    Have been having the same issues starting in 2017. I was diagnosed in 2019.

    While walking in a crowd I must hold onto my wife’s elbow so I can continue to move through the crowd. I quite often get a bit disoriented and act like a really really old man. I am going on 74.

    I have come to refer to this state for me as “Walking through life in real time in slow motion.” I have a big problem with crowds in general as they are very disorienting for me either walking through them or in other crowded areas.

    My eyes seem to get overloaded and start acting funny. I then start to stutter and then my hands start to shake. At that time I know I must get away from that environment and find a quiet space.

    I only have so much energy to spend at a time and when my energy gets tapped, the above symptoms raise their ugly heads. My eyes can only accept so much input at a given time….

    Just my take –

    Scott

  • Sally W Hardter

    Member
    February 5, 2025 at 6:39 am

    I’ve had balance issues since diagnosed in 2013. Some times worse then others. I retired two years ago but often would stumble and fall at work much to the chagrin of my workmates. I often think it’s connected to my vision problems with a feeling of dizziness when making quick turns or getting up after being seated for a time. I have learned to slow down when making positional changes but as usual, not much we can do about it

  • Living

    Member
    February 5, 2025 at 9:44 am

    When I responded to this forum earlier I was still wondering if my own balance issues could be due to MG. After reading the other responses that have been posted I am certain that balance issues can be caused by MG – and perhaps aggravated by aging. Good to know.

  • miche

    Member
    February 5, 2025 at 5:51 pm

    I have fairly good balance because I do the leg press at the gym 3/4 times a week, I tried to push my weight, 110lbs. It keeps me from falling, best machine in the gym. If you sit properly, it doesn’t harm the knees and strenghten my thighs.

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