Profile

Name

Cheryl

Last Name

Carlson

Nickname

Cheryl

Short Bio

2016 all the sx after a resp illness, in 2017 started diagnosis hell, given and taken several diagnosises that discounted the drooping face/eyelids, difficulty holding head up, breathing, swallowing.After 2 muscle biopsies, 5 neuros demanded mestinon which gave 25% improvement in PFT,walking, speaking, swallowing. Told triple sero neg, neg SFEMG and many diseases respond to mestinon which they will allow for “comfort”, was told will reconsider if I have a true MG crisis requiring vent instead of multiple times needed oxygen/bipap!!!

Year of birth

1958

Gender

Female

Location

IL

Relationship

Patient

How did you hear about us?

MG Website

How long have you or the person that you are caring for had MG?

sx started 2010 really bad 2016

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