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Winston D Roden replied to the topic Living With An Implanted Port in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 1 month, 2 weeks ago
My port has been a blessings. When I first started getting IVIG it was relatively simple, but then I started having difficulty. Hard to stick, vein blowing out, having to move it during the infusion and so on. Then one day in Infusion RN asked if I had considered a port. A call to the doctor, a trip to the hospital for the implant, which I sta…[Read more]
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Winston D Roden replied to the topic Port to Help Ease Myasthenia Gravis Treatments in the forum Healthcare and Myasthenia Gravis 11 months, 2 weeks ago
A simple statement: I agree a port is the way to go. After some time my veins were failing and a nurse mentioned a port. I have never regretted it.
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Winston D Roden replied to the topic Advice for Stomach Issues Caused by Meds? in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 1 year ago
Yes, my meds have caused GI issues. I have eaten many crackers which seem to give some relief.
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Winston D Roden replied to the topic Poliomyelitis and MG in the forum Myasthenia Gravis Research, Scientific News, & Clinical Trials 1 year ago
I was diagnosed with Mg in 2019. I too had a mild case of Polio in the mid 1950’s around ten years of age. A first cousin I was in close contact with was hospitalized, but the Doctors said they were trying to keep from have two in the family hospitalized at the same time. I have had problems with pain in my legs ever since. My MG has ce…[Read more]
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Winston D Roden became a registered member 1 year ago
Hello, Winston! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself…[Read more]