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Losing balance
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I have had MG all my life, now 74. I was also diagnosed with MS. I’m just an M&M girl! 😊 Balance issues have always been there. When my husband and I walk in a mall he tends to hang on to me because, not realizing it, I tend to drift away from him while walking. If he doesn’t, then he has to reach out and pull me back. Going around corners, if I don’t hang on to the wall, I just keep on turning. 🤸♂️ You really need to keep a good amount of humor at things that happen. We can’t change what we have but we can fight as much as we can in not letting it rule our happiness. Take care to all with MG and/or MS.
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Hi again! I forgot about the time my husband and I were on a cruise and we got into high waves. As we walked back to our cabin and the ship was really swaying, I was walking great. My husband was all over the place. I just looked at him and said, “Now you know how it feels to walk like I do at times.” We both laughed. Laughter is the best Medicine!
Rosanna
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I have balance issues definitely since diagnosis. Fairly mild now but still there. Some vertigo too. I do core workouts to help. But heard MG affects your ear so not surprising.
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I am 72 and have to accept that there are many changes which will be due to not only my myasthenia Gravis’s. I cannot concentrate for long, but realise that we share common issues. I do have lung problems as well as other issues. But balance can have many causes. Apparently it’s common with old age to have something called small vessel icschemic disease. Simply put for a number of reasons the brain does not get enough oxygen. It puts one at risk of stroke etc. I’m waiting to see my neurologist to review my scan and explain. Memory, balance, and a number of other issues are cased by this problem. Maybe others can ask their neurologists about it.
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Hello fellow snowflakes.
Just to add a word of warning. I was originally diagnosed with MG 15 years ago. At that stage I never had balance issues.
A few years ago I was diagnosed with a cluster of neuro diseases – the worst of which was CIDP – which was causing me to fall regularly. But this was from feinting and dizziness.
As with all Neuro diseases, one learns to adapt one’s lifestyle to the symptoms. Balance issues were mot one.
Last year I developed balance issues. This was in turn diagnosed with Ataxia.
This is a neuro (or sometimes brain) disorder which is all about balance.
Both CIPD and Ataxia are much more invasive and potentially deadly diseases than MG.
I would suggest anyone with balance issues see your neurologist and ask about whether you could be affected by one of these diseases.
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Yep; “lose my balance” problems! I agree it helps to keep a stern sense of humor. When walking with my hubby and I lose my balance, I give him a flirtatious, double eye arch. We both chuckle and keep walking! When vertigo hits, I force my eyes to stare. And finally, I find staying active at the gym, elliptic, weight machines, and outdoor walking keeps any weakness attacks minimal. I am also taking mestinon and getting Soliris infusions (real lifesavers). Thank you all for your input; helps me feel “normal”.
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