Forum Replies Created

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  • Delia Hernandez

    Member
    July 10, 2023 at 9:43 am in reply to: Remission

    You have a great attitude towards this. Keep it up, sweetheart.

  • Delia Hernandez

    Member
    July 9, 2023 at 5:15 pm in reply to: Caregivers, When Do You Know You Need to Take a Break?

    Everyone needs a break, especially full-time caregivers. It has been proven that caregivers experience high levels of stress. Therefore, it is crucial for them to practice self-care. Seeking guidance and support is essential for maintaining their well-being.

  • Delia Hernandez

    Member
    July 7, 2023 at 10:40 am in reply to: Homeopathy and Myasthenia Gravis

    It is also important to mention that many diseases are manifestations of our own mind, which is why mental hygiene is crucial. Avoiding stress and practicing relaxation is essential.

  • Delia Hernandez

    Member
    July 5, 2023 at 5:27 pm in reply to: Problems around your birthday??

    That sounds rather unfortunate. I’ve never experienced anything like that. On my birthday, I only hope for moments of happiness, and if someone wants to give me a wonderful gift, I am grateful for those little things.

  • Delia Hernandez

    Member
    July 3, 2023 at 6:43 pm in reply to: Imagining a Life Without MG

    Many people tend to use this to somehow feel emotionally down. It is a bit unfortunate. I hope that people become more aware and grateful for their circumstances.

  • Delia Hernandez

    Member
    June 30, 2023 at 5:38 pm in reply to: Homeopathy and Myasthenia Gravis

    Homeopathy and alternative medicines help me a lot with stress relief, which I find beneficial.

  • Delia Hernandez

    Member
    June 27, 2023 at 8:39 am in reply to: Hope for those who have not responded initially

    Lots of encouragement to everyone who suffers from a chronic illness. It’s a daily battle, but we must continue to face it with resilience and not give up.

  • Delia Hernandez

    Member
    June 24, 2023 at 11:13 am in reply to: Smoking and MG

    In response to those who are really interested in hemp-derived flowers, in my personal experience, it depends on the day. Sometimes, I feel relaxed, which is the main effect, and it helps me sleep. But if one is too anxious, due to the same problems of having a chronic illness, it can sometimes lead to desperation. In those cases, I would not recommend using it without first achieving a state of calm.

  • Delia Hernandez

    Member
    June 23, 2023 at 8:42 am in reply to: Smoking and MG

    Nowadays, I prefer flowers over tobacco, to be honest. I’ve noticed that it brings me better benefits and they can be found in specialized stores.

     

     

     

     

  • Delia Hernandez

    Member
    June 20, 2023 at 11:22 am in reply to: Dry brushing

    Well, I’ve personally only done something like this a few times, but if you do feel improvement, it can be good for improving blood circulation a bit. But everyone’s different, so your experience may vary.

  • Delia Hernandez

    Member
    June 19, 2023 at 11:35 am in reply to: Summer Heat & MG

    Whenever I can, I take a dip in a pool or wherever I can find some water. This helps me during the summer with the heat. It reduces the intensity of my pain and it’s also refreshing. Honestly, I don’t think too much about the seasons because they’re just a normal part of life.

  • Delia Hernandez

    Member
    June 16, 2023 at 11:45 am in reply to: How Is The Pandemic Still Affecting Your Life?

    The truth is, it deeply affected my life. But I’m not someone who dwells on the past. I prefer to focus on the present and manage myself as best as I can towards the future.

  • this is a really good site. Hope you have been participating posting because here people is really kind.

  • Delia Hernandez

    Member
    June 12, 2023 at 9:51 am in reply to: Feeling Like a Nuisance

    this is exactly what I needed to read. Everybody is fighting their own personal battles. But never give up

  • Delia Hernandez

    Member
    June 9, 2023 at 8:54 am in reply to: Sleep aid

    thanks to everybody who always answer in this site, you are very lovely. Thank  you, I really appreciate it.

  • Delia Hernandez

    Member
    June 7, 2023 at 9:09 am in reply to: Sleep aid

    I’ve been trying Inheal products and now I feel better. Those are great, hopefully somebody could feel relief with them. Those are not bad products. But a help to people who is suffering.

  • Delia Hernandez

    Member
    June 4, 2023 at 12:36 pm in reply to: Sleep aid

    I am using delta but this only when my pain can’t even let me sleep a single hour…. I know this is not orthodox way but living in pain is such a hell sometimes…

  • Delia Hernandez

    Member
    June 2, 2023 at 11:43 am in reply to: Is MG hereditary?

    genetic component that contributes to the condition. In most cases, MG is not inherited from parents or passed down through families.

    MG is an autoimmune disorder that occurs when the immune system mistakenly attacks the acetylcholine receptor (AchR) at the neuromuscular junction, which results in weakened muscles and fatigue. There are some rare cases where a genetic mutation can cause congenital myasthenic syndromes (CMS), which shares some similarities with MG. However, CMS is caused by a genetic mutation rather than being hereditary.

    In summary, while MG is not generally considered a hereditary disease, rare genetic mutations could cause conditions that share similar symptoms with MG, such as congenital myasthenic syndromes.

  • Delia Hernandez

    Member
    June 1, 2023 at 11:49 am in reply to: Sleep aid

    Have been thinks about those options also

  • Delia Hernandez

    Member
    June 1, 2023 at 11:48 am in reply to: Sleep aid

    Thanks to share this information, it is really a help.

  • Delia Hernandez

    Member
    May 31, 2023 at 8:21 am in reply to: Cannabis and Alcohol

    I can`t lie, I try gummies from several manufactures trying to reach some sort of resolution of Chronic Pain.
    Yea I know everyone has it and others have it worse, so if you have it you know how much it sucks! I know pain along with the others who are trying to find a little relief from anything at all

  • Delia Hernandez

    Member
    May 28, 2023 at 5:39 pm in reply to: Probiotics for MG

    Probiotics have been shown to have anti-inflammatory properties, which could help reduce inflammation that contributes to MG symptoms. They may also help improve neuromuscular function by enhancing the bacterial balance in the gut. Research has found that individuals with MG tend to have a lower presence of beneficial gut bacteria, and probiotic supplementation may help restore the balance of gut bacteria and potentially mitigate ocular MG symptoms.

    However, more research is needed to confirm the efficacy of probiotics as a treatment for MG. It is also essential to note that probiotics are not a substitute for traditional medical therapies used for MG management, and individuals considering using probiotics for MG should speak with their healthcare professional first.

  • Delia Hernandez

    Member
    May 26, 2023 at 3:54 pm in reply to: Aging from a Chronic Illness Perspective

    Myasthenia Gravis (MG) is a manageable condition, and most individuals diagnosed with it can lead fulfilling and productive lives. While there is currently no cure for MG, available treatment options such as medications, plasma exchange, and thymectomy can improve a person’s symptoms and quality of life.

    With proper treatment and care, the majority of individuals with MG can expect to manage their symptoms well and maintain daily activities. However, the severity of symptoms varies from person to person, and some individuals may require additional assistance or accommodations to perform activities of daily living.

    It is also important to note that the condition can be unpredictable, with periods of remission and exacerbation, requiring regular medical check-ups and monitoring of the condition’s progress. Individuals with MG can benefit from adopting a healthy lifestyle and learning stress management techniques to prevent symptoms from worsening. Engaging in physical exercise, a balanced diet, and getting enough sleep can also help maintain overall well-being.

    In conclusion, while MG can be a challenging and unpredictable condition, most people with this condition can lead fulfilling and productive lives with the proper treatment, self-care, and management. It is essential for people living with MG to receive support, regular medical check-ups, and take an active role in their treatment to manage the condition effectively.

  • Delia Hernandez

    Member
    July 9, 2023 at 5:12 pm in reply to: Sleep aid

    yes, those are a bless when I am having a hard time.

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