I hate Myasthenia Gravis hate it. I want my life back hopeful Rituxan will help with that . My neurologist told me to not push to exhaustion try to stop and rest but when I a few good days I go for it. He said not stopping and pushing sets me up for flare ups. My whole life I have been a go getter . Gosh I don’t want to be on the pity pot but it’s been a hard 4 years. I am learning to take breaks and rest when I have to. I have learned to respect the disease and the limitations I am adjusting to. I can walk a mile or 2 okay great but I can’t climb or hike 6-10 miles anymore . Heat is a killer so cool weather is a welcoming event.
I had huge plans for my retirement to travel, hike, camp National Parks and some International destinations. I managed to go to John Muir and walk the easier trails, Watkins Glen, Yellowstone, local Wildlife Refuge parks. I am grateful for that but it was earlier in my MG and I have worsening gMG now.
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