Viewing 2 reply threads
  • Author
    Posts
    • #18100
      Michelle Gonzaba
      Participant

        Sometimes, I try to imagine what my life would be like if I didn’t have MG. But then I realize it’s not helpful to dwell on things that won’t happen.

        Do you ever imagine life without MG? Do you think it’s good for your mental health to do so?

      • #18106
        ANITA A. TARLTON
        Participant

          I remember my life before MG.  I mourned the loss for a long time.  Then, I decided slowing down some wasn’t such a bad thing.   Life’s easier when you accept yourself.

          • #18113
            TheresaG
            Participant

              Anita that’s very positive input and I love the thought of it. However, I have so many to-do lists that I can’t get to the end of in order to slow down.

              Until then I just keep pushing that ball up a hill and the days I can’t I don’t. I am getting better at accepting that.

              It would be so nice not to have this limitation.
              I feel sorry for those of you that acquired this at a young age.

          • #18173
            Deb Couraud
            Participant

              I hate Myasthenia Gravis hate it. I want my life back hopeful Rituxan will help with that . My neurologist told me to not push to exhaustion try to stop and rest but when I a few good days I go for it. He said not stopping and pushing sets me up for flare ups. My whole life I have been a go getter . Gosh I don’t want to be on the pity pot but it’s been a hard 4 years. I am learning to take breaks and rest when I have to. I have learned to respect the disease and the limitations I am adjusting to. I can walk a mile or 2 okay great but I can’t climb or hike 6-10 miles anymore . Heat is a killer so cool weather is a welcoming event.

              I had huge plans for my retirement to travel, hike, camp National Parks and some International destinations. I managed to go to John Muir and walk the easier trails, Watkins Glen, Yellowstone, local Wildlife Refuge parks. I am grateful for that but it was earlier in my MG and I have worsening gMG now.

          Viewing 2 reply threads
          • You must be logged in to reply to this topic.

          ©2023 KLEO Template a premium and multipurpose theme from Seventh Queen

          CONTACT US

          We're not around right now. But you can send us an email and we'll get back to you, asap.

          Sending

          Log in with your credentials

          or    

          Forgot your details?

          Create Account