Summary of IVIG Side Effects
I noticed several trends when looking back at the responses to an older topic on IVIG side effects. IVIG or Intravenous immunoglobulin is an infusion of immune proteins administered into the bloodstream (Hizentra is via injections beneath the skin). IVIG consists of immune globulins collected from donors and acts to destroy harmful antibodies in the bloodstream that mistakingly attack a person’s tissues and organs and block the production of new ones.
Of those who responded to the previous topic, IVIG is used as a treatment to quickly suppress the immune system during an MG crisis, before surgery, as a temporary medication, or as scheduled treatments. Most individuals in our forum receiving IVIG do so on a monthly regimen. Of those who receive treatments planned, some begin experiencing MG symptoms when they are due for treatment, drooping eyelids being the most discussed.
Those who experienced consistent trouble accessing veins mentioned the ease of the treatments after receiving a chest port to eliminate the arm pain.
IVIG may cause headaches, body aches, and chills during the infusion. Nausea and fatigue were the side effects most noted by forum members. Someone mentioned experiencing migraines, but minor headaches are more common.
Overall it appears most individuals who have consistent IVIG respond well without harsh side effects for at least a period and notice improvement with treatment. Sometimes improvement from the infusion is seen rapidly. Still, the improvement from the drug is sometimes not apparent until one medical team decides to alter the dosage or discontinue the treatment. Sometimes, the body stops tolerating the therapy after a while, forcing patients to switch to an alternative infusion.
Log in to reply.