Maureen Gosz

What do you look up to find out what drugs or supplements are bad for MG?

I have no idea why this dr questions everything my other dr did. My other dr was young & up on everything. The dr I’m seeing now is old, & old school. He keeps bringing up the past, of when things were like this, or that medication used to be called this. Really? Do I need to know that? I want here & now.
I am going to the Medical Teaching College…[Read more]

I was diagnosed with MG going on 3 years in August. Also seronegative. My neurologist put me on azathioprine, Mestinon, prednisone, and hyoscyamine, which helps immensely with stomach problems. He told me that I’m the best judge of how my body feels, and let me adjust the Mestinon myself. This worked out great. He really listened, and even had a…[Read more]

At 60 years old my lifes passions have changed. I was working with my horse to do endurance riding, when MG crept up on me. Being misdiagnosed for years ,I was finally diagnosed 2 years ago. Needless to say, I had to get rid of my animals.
I have always had a passion for flower gardening, which has expanded to many flower beds. I cannot do what I…[Read more]

Omg! Definitely low pressure systems. We are in a rut right now with rain, rain, rain! I feel like I got hit by a dump truck!
The heat & humidity are also major factors in how I feel.
Kelley, you are correct with indoor temps also. It gets extremely warm where I work,& it sure takes a toll. I wear a cooling scarf, but will have to check out the…

Hello Amy, thanks for the info. I am in the process looking for a new eye dr. There isn’t a neuro-opthalmologist around here, so a regular one will have to do.

Thanks again,
Maureen

Ari, sorry to hear about another crisis. Thank you for the tip on the eye mask.
What happens with an occular crash?

My eyes have been progressively getting worse. I can barely keep them open. They are red, swollen, painful burning, & feel like there is a ton of grit in them all the time. Occasionally I have double vision, it is more blurry than anything,& I do wear glasses. I do cold compresses which give me relief for a short time. Does anyone else have these…[Read more]

Anita, I love the analogy you gave of the energy of a sedated sloth! So true! Some days the fatigue is so bad, I could just drop where I stand.
I am 60,& was diagnosed in 2020. I grew up on a farm, & have a hobby farm, now, minus the animals. It just devastated me to get rid of my animals, especially my horse. It was getting to the point that I…[Read more]

Thanks Jodi! I was feeling pretty dumb with all the help people were giving me, & I still couldn’t figure it out! I don’t have a computer, just the phone. Thanks again! 😊

Ok,followed what you said, but I do not see the boxes that you mention, friend, public or private message. 🤔

I feel dumb. Did what you said, but still can’t find it. I’m done. I’ll just keep reading these responses as they come through. Thanks.

I don’t have a clue how to private message. Help.

Thanks! I’ll have to check that out.

I’ve never zoomed. I don’t have a computer, just my phone. I’m not a tech person!

Delta 8 THC is a psychoactive compound found in the cannabis plant. It has a slightly different chemical structure that makes it a lot less potent than true cannabis. It takes pain away, & gives relaxation. I take it in the evenings only. It seems to be the only thing that has worked for me. Daily I take 125mg of azathioprine, 300mg Mestinon, &…[Read more]

What is SOB?

My leg pain isn’t cramps, though occasionally I do get those, it’s intense burning & pain. I can sleep for about 4 hours, with the delta 8, but wake up with the burning again. My legs are pretty much in pain all the time. I’m in Wisconsin, so I was out sweeping our deck from snow yesterday afternoon. Then went & filled up my bird feeders, when I…[Read more]

Thank you ladies for the support. I am one that does what the doctor says, but now I see that you have to be an advocate for your own health. I won’t just sit there and say ok anymore. It’s really hard to find a good doctor. I’m going on my 3rd primary care doctor. I see her at the end of this month.

Thank you Cyndi!