Maureen Gosz

Don’t make plans.

My husband and I have told people we know about the gummies & gel, but there is such a stygma about using it. Alot of people think that taking 1 gummy is going to do it for them. You have to be consistent and take them every day. We have been using for years now. My husband, with such a bad back, takes 2 every night. I take 3 every night, and we…[Read more]

To John P.
Good luck! I hope it works for you!

My husband and I both use a cbd roll on. The place we go to has 500 mg. or 1500 mg. It’s amazing. I have severe pain in my neck, and my husband has a bad back. It’s amazing! It works throughout the day, no side effects, and we take the gummies at night. My husband’s back was so bad, it would drop him to his knees. He did go to a chiropractor and…[Read more]

In the past 5 years, I have had my throat dilated twice. I ended up this last time, to find out I had an infection in my esophagus. I was constantly clearing my throat and coughing. So, after 21 days of meds, the coughing and throat clearing hasn’t gone away. Needless to say, swallowing is getting very difficult. They took a chest x-ray, and told…[Read more]

I take the cbd gummies or the delta 8 chocolate bar. Only in the evening though. It helps take the pain away in my legs and sleep a little better. I’ll drink a wine in the evening occasionally, but I usually add white soda to it. My doctors haven’t said anything about my use of it.

Greetings!
It has just gotten ridiculously costly. Inflation hasn’t helped any. The cost of meds & Inflation, more is coming out than what’s going into the bank.
It is getting very stressful. I did do the IVIG until my insurance company decided they weren’t going to pay for it anymore. It costed $25,000 a month for those treatments. I did it for…[Read more]

What do you look up to find out what drugs or supplements are bad for MG?

I have no idea why this dr questions everything my other dr did. My other dr was young & up on everything. The dr I’m seeing now is old, & old school. He keeps bringing up the past, of when things were like this, or that medication used to be called this. Really? Do I need to know that? I want here & now.
I am going to the Medical Teaching College…[Read more]

I was diagnosed with MG going on 3 years in August. Also seronegative. My neurologist put me on azathioprine, Mestinon, prednisone, and hyoscyamine, which helps immensely with stomach problems. He told me that I’m the best judge of how my body feels, and let me adjust the Mestinon myself. This worked out great. He really listened, and even had a…[Read more]

At 60 years old my lifes passions have changed. I was working with my horse to do endurance riding, when MG crept up on me. Being misdiagnosed for years ,I was finally diagnosed 2 years ago. Needless to say, I had to get rid of my animals.
I have always had a passion for flower gardening, which has expanded to many flower beds. I cannot do what I…[Read more]

Omg! Definitely low pressure systems. We are in a rut right now with rain, rain, rain! I feel like I got hit by a dump truck!
The heat & humidity are also major factors in how I feel.
Kelley, you are correct with indoor temps also. It gets extremely warm where I work,& it sure takes a toll. I wear a cooling scarf, but will have to check out the…

Hello Amy, thanks for the info. I am in the process looking for a new eye dr. There isn’t a neuro-opthalmologist around here, so a regular one will have to do.

Thanks again,
Maureen

Ari, sorry to hear about another crisis. Thank you for the tip on the eye mask.
What happens with an occular crash?

My eyes have been progressively getting worse. I can barely keep them open. They are red, swollen, painful burning, & feel like there is a ton of grit in them all the time. Occasionally I have double vision, it is more blurry than anything,& I do wear glasses. I do cold compresses which give me relief for a short time. Does anyone else have these…[Read more]

Anita, I love the analogy you gave of the energy of a sedated sloth! So true! Some days the fatigue is so bad, I could just drop where I stand.
I am 60,& was diagnosed in 2020. I grew up on a farm, & have a hobby farm, now, minus the animals. It just devastated me to get rid of my animals, especially my horse. It was getting to the point that I…[Read more]

Thanks Jodi! I was feeling pretty dumb with all the help people were giving me, & I still couldn’t figure it out! I don’t have a computer, just the phone. Thanks again! 😊

Ok,followed what you said, but I do not see the boxes that you mention, friend, public or private message. 🤔

I feel dumb. Did what you said, but still can’t find it. I’m done. I’ll just keep reading these responses as they come through. Thanks.

I don’t have a clue how to private message. Help.