Charles Karcher

I have a primary care doctor.  He is the first to admit he is not informed enough to oversee my Mg treatment.  That is the arena of my neurologist.  The only connection to my Mg that the primary care doctor has is providing the prescription authorizations for all my medications.  I think it is important for at least one doctor to know and pre…[Read more]

Unfortunately both my dogs died within 8 months of my diagnosis.  It does take a lot of energy to give them the proper care.  So far I have decided to not get another pet.  I really don’t have someone I can trust or impose on to take care of a pet should my illness render me unable to care for them.  Also I was a late onset diagnosis and now at…[Read more]

The symptom I fear most is the inability to swallow.  Actually my first symptom was double vision.  That soon progressed to inability to swallow and slurred speech.  It took 4 hospital stays over a three month period to stabilize my condition.  Each time I was fitted with a nasal feeding tube to receive nourishment and oral medicines.  Gett…[Read more]

I got my booster shot 3 weeks ago today.  I had only a mildly sore arm for the first two shots and no reaction at all to the booster.

I take 2000 mg of Mycophenolate Mofetil daily.  Presumably we are talking about the same thing.  I have been taking the same amount for approximately 18 months.  My other Mg medications are Mestinon and Soliris(infusion).  The only side effect I experience of the above is occasional diarrhea which I more attribute to the Mestinon than the Cel…[Read more]

Very hot or long showers occasionally seem to lead to slightly labored breathing during the shower.  No lasting effect once the shower ends.

Received my third shot today.  My county is in the red zone.  I am not going anywhere.  I am contemplating returning to grocery delivery.  I am also canceling a trip for an indoor concert.  I was very excited to book the trip after being vaccinated but now consider the trip too dangerous.

I was very excited to be immunized in Feb and Mar to the point of buying tickets for an October indoor concert.  Now I am on the verge of canceling the hotel reservation and attempting to sell the ticket.  I wear a mask at all times.  I have not gone to restaurants or movie theaters and have no plans to do so in the foreseeable future.  I was hav…[Read more]

I have frequent need to urinate through the day.  I take 400mg of ibuprofen before bed and am able to get through the night with 1-2 trips to the bathroom.  I currently take 2000mg of Cellcept, 2x180mg Mestinon long release and Soliris infusion bi weekly.