How Would You Rate the Quality of Your MG Care?
Think back to when you were first diagnosed with Myasthenia gravis. You might be familiar with the long wait period to be seen by a doctor. The same goes if you are currently at this stage.
Stay adamant about advocating the severity of MG, and you may get a practice to fit you in reasonably quickly into their schedule. The wait can be a difficult and scary period if symptoms are flaring. Many of us are so relieved to have a doctor begin treating us that we accept it at whatever level of care. We may only know how great and knowledgeable an MG professional should be with something to compare it.
Realistically, few doctors worldwide will dedicate more than a small amount of their time and care toward a rare disease. But dedication to a patient still matters, and being given all information and treatment options is a right everyone should have access to and the opportunity to receive.
How would you rate the quality of your MG care team and doctors? What do you appreciate about your MG health professional, and what aspects would you like to see an improvement in?
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