Myasthenia Gravis News Forums Forums Healthcare and Treatments Do You Have Other Family Members With MG?

  • Do You Have Other Family Members With MG?

    Posted by jodi-enders on August 30, 2022 at 12:35 pm

    Research and understanding of the genetic components of MG are limited. New findings are revealing that MG has the potential to be passed down through generations of family. How these genes contribute to MG or predispose an individual to risk is still being studied. 

     

    Do you have blood relatives with Myasthenia gravis? Do any live with other autoimmune diseases?

    rosanna-langley replied 2 weeks, 2 days ago 8 Members · 7 Replies
  • 7 Replies
  • jane

    Member
    August 31, 2022 at 7:10 pm

    My niece 20 years younger than I, acquired MG when she was 39. I was diagnosed at 64. She has infusions every other week I have no infusions, takes 180 mg mestinon daily plus other meds I am not aware .   I was taken off Mesitnon  last month. I’m down to 2.5 mg prednisone daily, Microphenolate 500 mg daily, and CellCept 300 mg daily.  We both have multiple Auto-immune diseases.

    jane

  • june-robertson

    Member
    September 1, 2022 at 2:42 pm

    I don’t know for sure, but my paternal grandmother who died at 76 in 1956, was bedridden for three years. She was said to have heart problems, and I’m sure she did, but she had “drooping” eyelids for a long time, so I wonder if in those days she was undiagnosed. I was diagnosed in 1962, and it was said I was one of only very very few in Australia at that time, so doctors were not very aware of MG in those days. I have recently …..after 4 Covid vaccines and a dose of ‘flu, got another autoimmune problem, polymyalgia rheumatica, which is a “pain” both practically and metaphorically! My mother had that one. Is autoimmunity pretty much a family problem?

  • jul

    Member
    September 2, 2022 at 7:42 pm

    No other family members with MG that I’m aware of. I was diagnosed 5 months postpartum at the age of 28. My mother had several autoimmune issues (Common variable immune deficiency and aplastic anemia) and someone on my dad’s side with vitiligo. I also have vitiligo…luckily that seems to be harmless

  • julie

    Member
    September 14, 2022 at 7:05 pm

    My aunt has MG and lupus. I have MG, psoriatic arthritis and labs said lupus but being called undifferentiated connective tissue disease for now. Both my children have psoriasis. My niece probably has lupus but is still in the gaslit phase with doctors…smh.  my father was told he had psoriasis late in life. He had tons of arthritis, bursitis issues but never diagnosed with anything specific.  My mother has tons of “ISSUES” and significant neuropathy. Lots of symptoms of Sjogens but not diagnosed.

  • darkwood

    Member
    September 7, 2023 at 2:47 pm

    I was just diagnosed with mg recently at age 66. My father was diagnosed with mg at around the same age.

    His symptoms were ocular and so are mine so far.

    If it is not hereditary, then it’s quite a coincidence!

  • barbara-e

    Member
    September 8, 2023 at 2:10 pm

    No one else in my family has MG.

  • rosanna-langley

    Member
    September 8, 2023 at 4:22 pm

    No one in my family has MG.

Log in to reply.