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I was diagnosed with MG 6 months after my symptoms started (I hear that’s relatively quick!). I started experiencing symptoms 5 months postpartum in August 2021. It all started with a weird smile where I felt like my face was stuck and my cheeks weren’t doing what they should to hold my smile. From there it progressed and eventually I had nasal/slurred speech, water coming out of my nose when drinking, impaired ability to chew and swallow food, eyelid drooping, a “funky” smile, inability to drink properly from a straw, and then arm weakness. I had seen my primary about some of the symptoms which were very mild at the time and she said we would watch. I had shingles and thereafter my symptoms got worse. I ended up seeing an ENT who sent me for an MRI of my head (normal) and then a neurologist who said it was likely MG the second she started asking me about symptoms. I have now been diagnosed officially by lab work and CT scan and have a thymectomy planned in 2 weeks! I have been taking mestinon 60mg Q6 hours and it helps a lot!

I am a nightshift nurse and a dance teacher with a 1 year old at home so I have a pretty active life. I can no longer do push-ups like I once did. Sometimes I have to put my son down when carrying him due to the arm weakness. I just hope I can get back to feeling stronger soon and not so frail