Myasthenia Gravis News Forums Forums Research and Clinical Trials Agent Orange Exposure and MG

  • David S

    March 24, 2023 at 6:49 pm

    Talked with a Law Firm today.  One of two that I have contacted.

    The Lawyer that we spoke with will take our case and feels confident that we will win.  They will appeal the previous decision and file for 100% service connected disability.  If we don’t get 100% they will file again based on TDIU for 100%.

    He understands the situation and says he has won like cases.  They have numerous relationships with medical professionals that can write a Nexus Letter if they feel it’s necessary.

    I have one more firm to hear from before we make our decision as to representation.

    The attorney that we talked to answered all of our questions and understood the process.

    Their fee:  20%.


    • paul spychalski

      February 28, 2024 at 2:23 pm

      Where do you live? I’m near Chicago.

  • Lou Venema

    March 24, 2023 at 7:13 pm

    What is a NEXUS letter?

  • David S

    March 24, 2023 at 8:05 pm

    Nexus Letters are letters written by medical professionals detailing the connections … List (exposure to radiation, Agent Orange, Camp Lejeune water, etc.) …”

    These letters are somewhat hard to come by.  They can be purchased on line from $400.00 to $2000+.  Most Medical Doctors do not want to write them as they have to say…the person “more likely than not” got the disease from exposure to Agent Orange.  Most Drs. are not aware of the studies and cases, so they can not make “the” statement in good conscience.  Neither my VA PCP or Neurologist was willing to make that statement.

    These letters are supposed to be written by professionals/experts after a complete review of the medical records and the patient.

    In my case the Appeal was Denied because I did not have this letter.  I supplied a couple of studies from the NIH that showed linkage between herbicide exposure and gMG, but the Regional Office did not accept them because a Dr. did not say…”More likely than not this patient got gMG due to the Agent Orange exposure”.



  • David S

    March 27, 2023 at 7:27 pm

    Signed with an attorney today.

    Denial below –

    1-The available scientific and medical evidence does not support the conclusion that the condition is associated with herbicide exposure. (38 CFR 3.303, 38 CFR 3.307, 38 CFR 3.309)
    2-The evidence also does not show that your disease developed to a compeusable degree within the specified time period after release from service to qualify for the presumption of service
    connection. (38 CFR 3.307, 38 CFR 3.309)

    3-The medical record shows that you were diagnose with myasthenia gravis in 2019.
    4-The evidence does not support a change in our prior decision. -Therefore, we are confirming the previous denial of this claim.

    5-Favorable Findings identified in this decision:
    You have Vietnam Service from March 2,1971 through September 3,1971. Therefore, exposure to Agent Orange is conceded.
    6-The claimed disability is a chronic disease which may be presumptively linked to your military

    -Myasthenia gravis is a chronic disease subject to presumptive service connection.
    -You have been diagnosed with a disability. You were diagnosed with myasthenia gravis on August 14, 2019.
    You have sufficient service to meet the minimum requirements for presumptive service connection. You served 90 days or more during a war period or after December 31,1946.

    The VA has acknowleged that I have MG and there is a presumptive Connection to my service in Vietnam but Denies the claim because it did not manifiest itself to 10% within 1 year from date of discharge.

    You might see conflicting statements:  Paragraph 1. ..scientific and medical evidence does not support the conclusion that the condition is associated with herbicide exposure.  Paragraph 5:  The claimed disability is a chronic disease which may be presumptively linked to your military service.

    So  Nexus letter might state…”Neurological disorders, due to herbicides/Agent Orange do not always expose itself within the time period allowed – 1 year after discharge.  The statement must be supported by scientific papers and studies from professional people.

    I guess we shall see what they have to say.



  • Randy

    May 24, 2023 at 2:46 pm

    I was stationed at an Army Depot 1972-74.  3 months before I was discharged, I was prescribed glasses with prisms, a treatment for double vision and a symptom of MG.  Note  – Nerve Gas was stored there.

    First I asked for my medical records from the national archives three times and got a few none relevents pages.  I then asked the VA for my “C-file”, claims file.  It took a year to get because Covid had just started.  It contained every VA record from military service, military health, VA education records, etc.  After 2 hours of searching the 1,600 pdf pages, I found my 3 visits for colds and my “Army Eye Exams”.  The exams showed the prisms being added to my glasses, after none for 21 months.

    I have found that no one evaluating MG at the VA knows what it is, though it is on the original service connected presumptive list.  When I appealed to the higher level reviewers, I finally got a chance to explain to someone and they didn’t know, but were good listeners and se5tup C&P exams.

    I was rated for MG because I had a symptom within 1 year of discharge.  In October, at the age of 72, I received 100% pay for TDIU (unemployability).

  • paul spychalski

    June 24, 2023 at 11:20 am

    I was in Cu Chi Vietnam in 1967, I was w/a Gunner on a Huey chopper, I took some pictures of the area around us, it looked like the “Surface of the Moon”. I have some pics if you like. The spray was called a “DEFOILIANT”! None of us thought twice about that, all my VN service friends are mostly dead, dying, crippled, (from AO) or suffering. I had 4 sons, one died, my three sons have 8 children and my deceased son left me one Grandson, 9 in total. I worry about my 3 sons getting AO health problems and my 9 Grandchildren and others down the line. I hope there’s an extensive study on our DNA and passing on AO diseases to our Children.

    respond if you like.

  • paul spychalski

    June 24, 2023 at 1:31 pm

    Jodi, read the “New” Pact ACT,.I posted on anther’s page here.

    Here is something else on immune disorders, (I was in VN 2/67 to 1/68)
    “Veterans and Agent Orange: Health Effects of Herbicides Used in Vietnam” <<Link<<

    • David S

      July 17, 2023 at 5:26 pm

      Update –

      The VA has Docketed my Appeal.  My Attorneys have 90 days to get my documents recorded.  The required Nexus Letter has been completed and am looking forward to seeing it.  From there it’s up to the VA Appeals Board.  I haven’t been able to get timing on this but could be anywhere between 90 days and two years.

      We shall see.


  • D Evans

    July 18, 2023 at 1:14 pm

    I’m following your post. Vietnam 1967 Macong Delta. Mg diagnosed 5 years ago. Had signs undiagnosed for years. It’s sad that most Doctors won’t write a letter saying 50 50. When they really don’t know. To me if I don’t know, that’s 50 50.

  • David S

    July 18, 2023 at 1:30 pm

    Hi D Evans –

    Actually the phrase is not 50/50, it is More Likely Than Not.  That is 51/49 or greater.

    Neither my VA PCP or Neurologist would write a Nexus letter for me because they did not know.   The law group that has taken my case has a number of specialists that review health records and provide expert opinions to the VA for consideration.  I am hopeful that my Appeal filed by this law group will be successful.

    When the VA denied my first appeal that said that I “May” have contracted the disease during my Tour not More Likely Than Not.

    Have you filed for Service Connection for you MG?




  • Bob W.

    July 31, 2023 at 9:03 am

    Hi all, I just wanted to say it is possible to get approved for service connection for MG from Agent Orange. I was just granted the service connection last month at 50%. Maybe my circumstances are a bit unusual in that I was Army Special Forces, and in Vietnam (and Cambodia) from Nov. 1966 to Jan. 1969, for a total of 26 months. I saw lots of combat, and do to the nature of my missions, ended up in areas being sprayed while I was on the ground below the spraying.
    I was able to get two nexus letters, one from my MG doctor, the foremost expert on MG in California, who is at UC Davis, and also a letter from the critical care neurologist who originally diagnosed me with MG after VA put me in the hospital for a complete work up after my unusual symptoms related to MG.The C&P examiner agreed with their “likely as not” diagnosis, and about a month after the the exam, I received my 50% award letter. Unfortunately, when one is awarded a service connection for MG, it isn’t common knowledge because of the privacy issue. Only when there is an appeal does it become open for review, as for the legal appeal publishing. So, it is possible. Thank you all for your service, and paying the price for our government’s defoliation tactics.
    Bob W.


  • David S

    August 1, 2023 at 11:25 am

    Congrats Bob W –

    My 2nd appeal, with a Law Firm, has been Docketed which means all of my Appeal docs, including Nexus letter, are due before Sept 30th, 2023.  From there it is up to the VA to review the Appeal Docs and make a decision.  Current review time is about 12 to 18 months.

    I originally filed for Service Connection in 2019 and Appealed in 2021 and my 2nd Appeal in July of 2023.

    It is a long process.


  • Bob W.

    August 2, 2023 at 3:23 pm

    Hi all, I meant to add in my post that I did a fair amount of research on the impact of toxins and their impact on being the potential cause of autoimmune diseases. I presented both the doctors with that information, and they were willing to write my “nexus” letters. One Dr. Was even to go beyond “likely as not”, to say Agent Orange was likely the cause of my MG. I now believe it’s much better to submit a claim “with both guns blazing”, than to wait for a denial then try to change the opinion of a VA examiner. Just my opinion.
    Bob W.

    • paul spychalski

      August 2, 2023 at 4:19 pm

      Thanks Bob

      I got back in January ’68, was at Cu Chi. A lot of things happened to me medically, Bladder cancer 1980, Thryoid cancer 1982, Peripheral Neuroprathy plus other problems. My Vet friends never talked about Nam. I finally went to the VA when a friend died of Bladder cancer. His wife talked me into going to VSO, American Leigon, that was in 2018, now mor things have popped up like MG!!!

  • David S

    September 28, 2023 at 7:21 pm

    Hi All – Follow-up –

    My Appeal to the Appeal Denial has been filed and the case is Docketed, as I shared above. Next month I should be able to see where I lie on the Docket and when it might be reviewed. As of today, the decision could be made in as little as 90 days, but it has been said that the review could take as many as 525 days. We are hopeful.

    All Appeal docs have been filed including a Nexus Letter from an independent MD/PHD specializing in, among other things, Toxins and their effect on the human body. He also explains how this disease can lay dormant for decades.

    The Letter looks very strong and is quite descriptive in how this disease effects me and provides the link between MG and AO and other Auto-immune disorders in Medical jargon with numerous References.

    We, our attorney and us, decided when we filed this Appeal, that the best way to address the Compensation Rate was to wait to receive this VA Decision Rating, see what their Rating is and Appeal the Rating Decision if the Rating not appropriate.

    This is a long process……


  • David S

    September 29, 2023 at 3:50 pm

    Thought I’d place interesting stuff….

    From my Nexus Letter

    “Multiple lines of evidence suggest that ADs have an environmental component. In some
    individuals, disease improves after removing a suspected environmental agent and/or
    worsens or reoccurs after re-exposure to the suspected agent. In addition to their role as
    possible initiators of autoimmunity, environmental factors might alter the rate of
    progression to clinical disease, the specific manifestations of disease expression, and/or the
    course of illness. After certain disease-initiating exposures, decades can pass before
    autoimmune disease manifests, and there can be a progression of stages from autoimmunity
    to preclinical disease with immune alterations to classifiable autoimmune disease. Despite
    the difficulties in defining environmental risk factors that lead to immunopathology, the
    number of candidates proposed for specific ADs is continuously growing. A significant
    body of research has pointed out that for autoimmunity to occur, the genetic background
    warrants to be combined with environmental injuries and novel associations have been
    described as the cause of the air pollution. Pollution and contaminants, such as AO
    contaminants are hallmark toxicants which have been noted to be putative toxicants.
    Solvents are liquids that dissolve a solid, liquid or gas. Organic solvents (AO) are
    compounds whose molecules contain carbon. They may be broken down further into
    aliphatic-chain compounds, such as n-hexane, and aromatic compounds with a 6-carbon
    ring, such as benzene or xylene. One must review and understand the inherent component
    of AO involved to make a nexus between ADs and AO (2-20).
    Benzene or dioxin, which is an inherent chemical of AO, is a putative disease-causing
    agent. Dioxin, also called polychlorinated dibenzodioxin, is a group of aromatic
    hydrocarbon compounds known to be environmental pollutants that are generated as
    undesirable by-products in the manufacture of herbicides, disinfectants, cleaning products
    and other agents. It is generally synonymous with one specific dioxin: 2,3,7,8-
    tetrachlorodibenzo-para-dioxin (2,3,7,8-TCDD). It is characterized chemically by the
    presence of two benzene rings connected by a pair of oxygen atoms. Whether going by the
    name dioxin, benzene, or TCDD, it is a highly toxic chemical, and a putative diseasecausing agent. As dioxin is a compound of benzene, the words will be used interchangeably
    in this discussion (21-23).
    Benzene and many similar contaminants are retained in some body tissues for a long time
    (even decades), so target organ exposure continues even after external exposure ceases.
    Even a brief external exposure, can involve protracted exposure of many organs. Disease
    induction, the point at which initiation of the disease occurs (the disease might not be
    apparent or detectable at this point), might even occur after external exposure ceases (20).
    Dioxin/benzene and its inherent properties have the propensity to stay dormant in the
    6 Siebert, D.
    human body for decades before symptoms are apparent. Thus, one can clinically
    extrapolate his exposure to AO, which has an inherent component of dioxin/benzene,
    manifested in MG years later for this Veteran.”

    • Doug

      October 2, 2023 at 11:01 am


      Thanks for sharing.

      My dad served during the Vietnam era in Guam and he says that AO was sprayed all the time for foliage control. He said he would often follow the truck spraying it not knowing what it was, now he has developed MG. With the PACT Act they have said that AO was used in Guam, however, before the passing of the act when he saw the doctor in the VHA the doctor wrote in his medical file that the MG was likely probably AO related.

      In my research I could not find any conclusive links to AO and MG. The VA says there is no link between AO and MG and has denied his claim for disability. MG is not a presumptive under the PACT Act nor is it a presumptive under 39 CFR 3.309 (e). It is a presumptive under 39 CFR 3.309 (a) however it has to be rateable within a year of separation (which is hard to prove with out medical evidence).

      I do have some questions about your NEXUS however, I did not notice any references to studies from your doctor unless I missed them. Would you have references that your doctor used to write the nexus to come to their conclusion.



    • paul spychalski

      October 6, 2023 at 9:00 am

      What about Ataxia? Anything on that?


    • paul spychalski

      November 5, 2023 at 7:34 am

      My VSO showed me a letter that states “Jet fuel and other fuels are linked to many Diseases”!

  • Randy

    October 2, 2023 at 11:47 am

    I received 100% P&T a year ago. I was in the Army 50 years ago for 2 years. Luckily, I found my Army Eye Exam and a Prescription for prisms in my glasses, 3 months before separation, in my VA claims file (C-file). Sometimes they don’t give you your Eye Exams when you request medical records, or raters don’t review them because they don’t know the significance.

    I filed for double vision and MG. After denials by raters who didn’t know anything about MG, The Higher Level Reviewers (HLR) would get me C&P exams, after a phone call with them (check the box). Since 85% of the time the first symptom of MG is double vision, the C&P examiners said I had MG in the service. File for double vision in order to have an optometrist as a C&P examiner. Mine noted the reason for double vision was because of have MG.

    • paul spychalski

      November 5, 2023 at 7:41 am

      How did you find your eye exam? I had a back injury in basic training, 1966, and I’ve had surgeries and injections from the time I had insurance in 1973. They don’t give any help in finding your old Army health records. TIA

  • David S

    October 2, 2023 at 12:00 pm

    Hi Doug –

    If you view the text from the Nexus Letter above, there are a number of Parentheses’ “()” in the text. For example: “…<i style=”font-family: inherit; font-size: inherit; color: var(–bb-body-text-color);”>a nexus between ADs and AO (2-20).” The References are in the “()” ie: (2-20). There are numerous References in that text.

    References below:

    1. Myasthenia Gravis: A Review. Autoimmune Dis. 2012; 2012: 874680.
    2. Miller FW in The Autoimmune Diseases Vol. 4 (eds Rose NR & I. R. Mackay) Ch.
    23, 297–308. (Elsevier, 2006).
    3. Anaya JM (2010) The autoimmune tautology. Arthritis research & therapy 12: 147
    4. Anaya JM, Corena R, Castiblanco J, Rojas-Villarraga A, Shoenfeld Y (2007) The
    kaleidoscope of autoimmunity: multiple autoimmune syndromes and familial
    autoimmunity. Expert review of clinical immunology 3: 623–635
    5. Selmi C, Leung PSC, Sherr DH, Diaz M, Nyland JF, et al. (2012) Mechanisms of
    environmental influence on human autoimmunity: A national institute of
    environmental health sciences expert panel workshop. Journal of autoimmunity
    6. Rook G (2011) Hygiene Hypothesis and Autoimmune Diseases. Clinical reviews in
    allergy & immunology: 5–15.
    7. Youinou P, Pers J-O, Gershwin ME, Shoenfeld Y (2010) Geo-epidemiology and
    autoimmunity. Journal of autoimmunity 34: J163–7.
    8. Pigatto PD, Guzzi G (2010) Linking mercury amalgam to autoimmunity. Trends in
    immunology 31: 45–48
    9. Finckh A, Cooper GS, Chibnik LB, Costenbader KH, Watts J, et al.
    (2006) Occupational silica and solvent exposures and risk of systemic lupus
    erythematosus in urban women. Arthritis and rheumatism 54: 3648–3654.
    10.Kiyohara C, Washio M, Horiuchi T, Tada Y, Asami T, et al. (2009) Cigarette
    smoking, N-acetyltransferase 2 polymorphisms and systemic lupus erythematosus
    in a Japanese population. Lupus 18: 630–638.
    11. Shoenfeld Y, Aharon-Maor A, Sherer Y (1997) Smoking and immunity: an
    additional player in the mosaic of autoimmunity. Scandinavian Journal of
    Immunology 45: 1–6.
    12.Cooper GS, Gilbert KM, Greidinger EL, James JA, Pfau JC, et al. (2008) Recent
    advances and opportunities in research on lupus: environmental influences and
    mechanisms of disease. Environmental health perspectives 116: 695–702
    13.Chang C, Gershwin ME (2010) Drugs and autoimmunity A contemporary review
    and mechanistic approach. Journal of autoimmunity 34: J266–75
    14.Barbara G, Cremon C, Carini G, Bellacosa L, Zecchi L, et al. (2011) The immune
    system in irritable bowel syndrome. Journal of neurogastroenterology and
    motility 17: 349–359.
    15. Shoenfeld Y, Agmon-Levin N (2011) “ASIA” – autoimmune/inflammatory
    syndrome induced by adjuvants. Journal of autoimmunity 36: 4–8
    16. Shoenfeld Y, Selmi C, Zimlichman E, Gershwin ME (2008) The autoimmunologist:
    geoepidemiology, a new center of gravity, and prime time for
    autoimmunity. Journal of autoimmunity 31: 325–330
    17.Chighizola C, Meroni PL (2012) The role of environmental estrogens and
    autoimmunity. Autoimmunity reviews 11: A493–501
    18.Farhat SC, Silva CA, Orione MA, Campos LM, Sallum AM, et al. (2011) Air
    pollution in autoimmune rheumatic diseases: a review. Autoimmun Rev 11: 14–21
    8 Siebert, D.
    19.Gourley M, Miller FW (2007) Mechanisms of disease: Environmental factors in the
    pathogenesis of rheumatic disease. Nature clinical practice Rheumatology 3: 172–
    20.High Prevalence of Myasthenia Gravis Among Rural Adult Populations. J Cli
    Neuromuscul Dis, 16 (2), 47-50 Dec 2014
    21.Institute of Medicine, Committee to Review the Health Effects in Vietnam Veterans
    of Exposure to Herbicides (1994). Veterans and Agent Orange: Health Effects of
    Herbicides Used in Vietnam. National Academies Press

    In my argument made to the VA, by my Attorneys:

    “One of the reasons the Court has found a VA medical examination or opinion
    to be inadequate is where the physician does not address all legal theories of entitlement
    to service connection. “A medical examination is adequate where it is based upon
    consideration of the veteran’s prior medical history and examinations and also describes
    the disability in sufficient detail.” El-Amin v. Shinseki, 26 Vet. App. 136 (2013). A medical
    opinion is inadequate if it is based on inaccurate factual premise. See Reonal v. Brown, 5
    Vet. App. 458, 460-61 (1993).
    In the case at hand, the VA examiner and the adjudicators relied solely on
    myasthenia gravis not being a presumptive Agent Orange related condition to deny
    service connection without meaningful analysis on the veteran’s exposure and
    individual medical history, including his lack of alternate risk factors for developing the

    Later in the Argument:

    Baber pointed out that dioxin/benzene and its inherent properties have the propensity
    to stay dormant in the human body for decades before symptoms are apparent. Dr.
    Baber further noted that one can clinically extrapolate Mr. Seibert’s exposure to AO,
    which has an inherent component of dioxin/benzene, manifested in myasthenia gravis
    years later.”

    I am neither a MD or Attorney and really do not understand how all of this fits together. I am hopeful that the documents submitted, to the Board, will be sufficient to Rate my gMG as a Service Connected disability. The VA has Rated gMG as Service Connected in many claims long after their stated 1 year requirement.

    My previously submitted claim Appeal that was Declined, and did show many of the References that Dr Baber uses. However, my previous Appeal did not have a recognized/qualified MD making a written statement that My gMG was more likely than not Service Connected.

    The VA also wrote in my second Appeal that I did not have a Nexus Letter from a Qualified/Recognized MD.

    I hired and Attorney to handle this Appeal as I did not have the Language or Resources to address the VAs Denials.


    • paul spychalski

      November 5, 2023 at 7:45 am

      Let me know how it works out… TIA!

    • paul spychalski

      November 9, 2023 at 2:29 pm

      Will that help w/VA benefits?

  • Natalie

    October 11, 2023 at 6:45 pm

    This is really really interesting!

    I was diagnosed with MG Ocular back in 2007. I recently found out my father was exposed to Agent Orange after being in the Vietnam War! Please Please keep us updated if they start doing research on the possible connection!

  • David S

    October 11, 2023 at 7:10 pm

    Sorry to hear about both of you. Does your Dad have gMG as well?

    I guess you might have an argument for getting it from Him but the Nexus between you and your Dad’s service in Vietnam will be difficult to document.

    I have placed an address that will give you some more information.

    Good Luck…..

    – BTW – I have no idea why the web page is being displayed. –

  • Doug

    February 23, 2024 at 8:10 am

    I like many of you have joined this group to try to connect MG to AO and get the VA to award disability for my father who was exposed to it during his service in Guam. In my previous post I noted that it was a presumptive under 39 CFR 3.309 (e), however it has to be rateable within a year of separation (which is hard to prove without medical evidence). But in the absence of medical evidence the VA is supposed to accept lay evidence. So, I wanted to share with you a lay statement I wrote for my father in support of his claim which he recently won and has been awarded 30% for AO and different secondaries for bilaterial PN. This was the third attempt (second supplemental) and I believe the mistakes we were making in the first two attempts were not concentrating on the symptoms within a year of exposure/separation. The last paragraph of the lay statement was medical opinions which included three doctors (neurologists) from the VAMC who wrote a statement in his notes and the fourth doctor was a non-VA doctor (neurologist in his network) who he paid to write a medical opinion.


    Several VA Board of Appeals cases have upheld Jandreau v. Nicholson, 492 F.3d 1372, 1377 (Fed. Cir. 2007), in which it describes “lay evidence” as being competent and sufficient to establish a diagnosis of a condition when (1) a layperson is competent to identify the medical condition, (2) the layperson is reporting a contemporaneous medical diagnosis, or (3) lay testimony describing symptoms at the time supports a later diagnosis by a medical professional.” In accordance with this ruling, I would like to give my statement as a layperson which has later been diagnosed by several medical professionals.

    I would like to offer my lay testimony in describing symptoms that I had at the time of service for my Myasthenia Gravis and Peripheral Neuropathy while stationed on Guam between December 1963 and September 1965. Shortly after arriving at Anderson AFB, I started noticing symptoms which have now been diagnosed by several medical professionals as Myasthenia Gravis and Peripheral Neuropathy. I never sought medical attention while in-service due to fear of reprisal from supervisors or being unable to find a good job after separation which is why these symptoms were not annotated in my medical records. Also, during my time in-service my supervisors were all civilian personnel who had little empathy for going to medical appointments, and I was never directly supervised by military personnel. I have noted my exposures to toxins in my past statements for these conditions, I also briefly touched on my symptoms.

    As noted in a previous statement one of the first symptoms I can recall is finding it difficult to swallow white meat chicken, I would have to use water to wash it down my throat. Also, I did notice my eyes starting to droop and I thought it was due to the sun so I would wear sunglasses. During my time in-service I only weighed about 140-pounds and when I arrived on Guam, I could pass the 5BX (the yearly physical exam) with ease, however, on my second year I was unable to pass the physical exam. Having difficulty eating, eye drooping, and muscle weakness are symptoms of Myasthenia Gravis.

    Also, during my tour at Anderson AFB, I developed symptoms of Peripheral Neuropathy. As noted in a previous statement my feet and legs started feeling numb and I would often get a sharp prickly feeling in my feet. While I was lying in bed, I would often feel like I was still wearing socks even though I was not. My legs were in constant pain making it difficult to get to sleep at times. When I was off-duty I would always wear tennis shoes because coral or sand on my bare feet was unbearable. This progressively got worse during my time in the military and was a reason for my separating.

    These conditions also affected my duties while in-service. I was taken off lineman duties and put in housing maintenance because I was unable to feel my feet while climbing utility poles. I also resisted going to Vietnam because I felt unfit to preform lineman duties because of muscle weakness.

    Along with my lay evidence I would like you to consider the medical opinion linking my condition to my time in service by Dr X on 12/29/2021, Dr Y 9/7/2022, Dr Z 9/8/2022 which stated that the Myasthenia Gravis was likely probably Agent Orange related and the Peripheral Neuropathy was most likely Agent Orange related. Lastly, I would like you to consider the medical opinion conducted on 10/29/2023 from Dr A who states both conditions are more than likely due to Agent Orange exposure.

  • Larry Boggs

    February 23, 2024 at 3:11 pm

    I was diagnosed with ocular MG about 4 years ago after developing double vision four months before that. I served in Vietnam from May 1969 to April, 1970 The double vision was severe in the beginning. First episode was like being in very bad 3-D movies as it affected mummy depth perception. it lasted about 4 to 5 months I was relatively normal, by

    It not perfectly so for two months I then suffered another 4 to 5 month long episode The symptoms were bad but as severe as the first I then again had two months of mostly normal but absolutely normal vision followed by a third 4 to 5 month episode This third episode was less severe than the second. Since then, roughly January, 2020, my vision has been mostly normal. When tired or stressed I can have some double vision always looking down and to the right— I also can have short periods when my vision doesn’t seem right but I don’t have double vision whether that is MG related or not I am not sure I have not been to my neurologist specialist in MG for years On my last visit he told me I was so much luckier than most of his patients as I am fundamentally functional and take no medications

    I do have diseases that are immune related that developed after Vietnam Thyroid issues and Diabetes

  • paul spychalski

    February 28, 2024 at 2:21 pm

    Also Jet enging fuel, diesel, jungle bug spray, etc…..

  • paul spychalski

    March 5, 2024 at 1:17 pm

    For Veterans:

  • paul spychalski

    March 7, 2024 at 12:07 pm

    Yes! Cu Chi 1967. Here’s a map, the yellow areas are the heavest sprayed area’s of “AO”. Cu Chi is close to Saigon. It won’t post here, but look at it here:

  • Shodo

    March 20, 2024 at 1:32 pm

    I am a Vietnam veteran and served one year at Bien Hoa AFB 1965-1966. This base was a major hub for Agent Orange during that time and possibly still undergoing toxic cleanup. I was diagnosed with Ocular MG in 2019 and since that time have developed shortness of breath issues. Condition has not progressed to General MG. Currently under treatment at VA Medical facility. Disability claim is pending but from what I have been reading I’m not optimistic about the outcome.

    • David S

      March 20, 2024 at 7:00 pm

      Hi Shodo –

      Sorry to hear you have Ocular but glad you don’t have generalized.

      I filed my first claim for gMG in 2019 and was deneid. Appealed and deneid again in 2022. Appealed again, with Attorneys this time, and is now Docketed and pending review by a VA Judge- someday. I understand that these appeals could take 180 to 550 days from date of filing. If you are over 75 they will expedited the claim. I am 73 this year so I can’t do that.

      The VA recognizes gMG as a Chronic disease associated with AO but it is difficult to tie the disease to AO and Service Connection after 1 year out of service.

      My second denial stated that my claim was missing a Nexus linking my disease to my exposure. The current appeal, with the assistance of an Attorney group that specializes in VA claims, contains a Nexus Letter written by a MD specializing in Neurological diseases. My latest clock started last September. 180 days + now.

      Good luck.


    • paul spychalski

      March 21, 2024 at 9:54 am

      Don’t give up! Get a VSO, I have an American Leigon VSO that has helped me. Besides AO the jet fues on the flight line causes immune disorders, check it ou!

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