The Lessons I’ve Learned Since My Myasthenia Gravis Diagnosis
Advice to Myself before Being Diagnosed with Myasthenia Gravis
Time has been my greatest teacher. She has taught me patience, resilience, and true commitment. She has taught me so many things I would love to share with my younger self.
If my myasthenia gravis diagnosis has taught me anything, it’s to appreciate movement. Go for every run I can. Take the stairs, not the elevator. Climb that mountain. Cherish my ability to move without requiring Mestinon (pyridostigmine bromide).
I used to be quite the field hockey player, and my life revolved around exercise. It was my outlet for stress, and ultimately became an integral part of how I managed my undiagnosed anxiety.
When myasthenia gravis robbed me of my ability to exercise, I lost more than a hobby. I lost access to my most effective mental health treatment. Since then, I have learned other ways to manage my anxiety but still firmly believe that movement should always be valued.
Good friends are another undervalued treasure. I shouldn’t waste my time with people who don’t appreciate me. Some people like me for who I am. When I fell ill, they were the ones holding my hand in the hospital. I don’t know why so many people waste their time on those who don’t see their value.
I have lost many friends since my diagnosis. One said I spoke about my illness too much. Another told me I was selfish for spending so much time in bed. Some people just respectfully faded away. But the people who have stuck around through all my medical messes are exceptional friends.
Myasthenia gravis has been very good at filtering people from my life. I am thankful for that. It has also highlighted the beauty in the ones I hold dear. The kindness and empathy displayed by the people who stuck around have left me awestruck at times.
An unexpected lesson I learned from living with MG is the value of following my heart. I have discovered the underrated happiness this can bring. This lesson has bestowed on me true romantic love, an occupation I enjoy and am passionate about, an Italian greyhound that has changed my life for the better, and a life I am proud to be living.
To my younger self: Myasthenia gravis is going to change your life. There will be moments when it’s for the worse, but if you choose to learn from MG, you can change your life for the better, too.
Never stop fighting. Life is beautiful.
Myasthenia Gravis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.