Stefanie Shea and her husband, Dave Akers, attend a recent concert. Shea is in her power wheelchair, which enables her to leave the house and participate. (Courtesy of Stefanie Shea) This is Stefanie Shea’s story: I’m a musician, artist, advocate, and nerd who has lived with myasthenia gravis…
News
A six-week program that combines inspiratory muscle training (IMT) and aerobic exercise may improve respiratory function in adults with myasthenia gravis (MG), a study in Taiwan shows. Those who followed the training showed strengthened respiratory muscles, improved lung function, reduced breathlessness, and enhanced physical fitness over those who received…
Wayne Seward was diagnosed with generalized myasthenia gravis in 2024. (Courtesy of Wayne Seward) This is Wayne Seward’s story: I was officially diagnosed with generalized myasthenia gravis (gMG) in February 2024. However, my journey began a few years earlier with four symptoms: chronic fatigue, shortness of breath…
Joe Enders and his daughter, Jodi, smile at a Florida spring two months after her thymectomy surgery. (Courtesy of Joe Enders) This is Joe Enders’ story: When our daughter was diagnosed with myasthenia gravis (MG), everything changed overnight. Jodi was in crisis and could barely speak,…
Women who have surgery to remove their thymus gland to treat myasthenia gravis (MG) tend to have experienced symptoms earlier in life than men, but waited longer to receive a diagnosis, a study reports. However, after the surgery, called a thymectomy, female patients have higher rates of complete…
Barry Stalker works out at the gym, his favorite place to challenge himself mentally and physically. (Courtesy of Barry Stalker) This is Barry Stalker’s story: I was always an active teenager. I played a variety of sports in school, which led me to discover the gym and, eventually, competitive…
The U.S. Food and Drug Administration (FDA) has cleared the launch of a Phase 2 clinical trial testing IM-101, ImmunAbs’ investigational therapy for myasthenia gravis (MG). The multicenter, placebo-controlled trial is expected to enroll up to 90 people with MG who will receive IM-101 or a placebo once monthly.
Jodi Enders reflects on her favorite place for creative inspiration and relaxation: the Everglades in Florida. (Courtesy of Jodi Enders) This is Jodi Enders’ story: I was diagnosed with myasthenia gravis (MG) just before the final semester of my undergraduate degree in anthropology, with an emphasis on…
Kristina Kelly holds her dog Noah. (Courtesy of Kristina Kelly) This is Kristina Kelly’s story: It took five neurologists, five years, and a lot of being told “but your labs are normal” before I was finally diagnosed with seronegative myasthenia gravis (MG). Like so many others, my journey…
The first patient has joined a Phase 3 clinical trial assessing the safety and efficacy of Descartes-08, an investigational cell therapy for myasthenia gravis (MG) being developed by Cartesian Therapeutics. Called AURORA (NCT06799247), the trial is expected to enroll 100 adults with generalized MG (gMG), a more…
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