Athena Sanchez graduates from Northern Arizona University. (Courtesy of Athena Sanchez) This is Athena Sanchez’s story: Living with myasthenia gravis (MG) is like constantly fighting a battle, and my body doesn’t always show up. I was diagnosed when I was just 18, barely out of high…
News
Jennifer Crow, who lives with MG, says she no longer silences herself. (Courtesy of Jennifer Crow) This is Jennifer Crow’s story: When I was first diagnosed with myasthenia gravis (MG), I thought having a name for my condition would unlock care and put me on the path to…
Telitacicept, a B-cell-targeting therapy for myasthenia gravis (MG), has been granted orphan drug status in the European Union, according to its developer Remegen. Orphan drug designation, or ODD, is awarded to medications that treat conditions affecting fewer than 5 in 10,000 people in the EU. The designation’s…
Mohammed Hanafi and Sarah Bendiff, seen here at a shooting range in Algeria, where they live, have together learned how to adapt to life with MG. (Photo courtesy of Sarah Bendiff) Note: Mohammed Hanafi’s girlfriend Sarah Bendiff is a Myasthenia Gravis News columnist who writes about her journey…
Yvette Bernal, left, with her daughter Eliza Roman as Eliza prepares to graduate high school. (Photo courtesy of Yvette Bernal) This is Yvette Bernal’s story: During my senior year of high school, I found out I was pregnant with a girl. I promised myself I was going to work…
Charlotte Laycock receives a plasma exchange to help control her myasthenia gravis. (Photos courtesy of Charlotte Laycock) This is Charlotte Laycock’s story: Being diagnosed with generalized myasthenia gravis (MG) in my early 30s was something I never expected. At the time, I was living a fast-paced single life…
Stefanie Shea and her husband, Dave Akers, attend a recent concert. Shea is in her power wheelchair, which enables her to leave the house and participate. (Courtesy of Stefanie Shea) This is Stefanie Shea’s story: I’m a musician, artist, advocate, and nerd who has lived with myasthenia gravis…
A six-week program that combines inspiratory muscle training (IMT) and aerobic exercise may improve respiratory function in adults with myasthenia gravis (MG), a study in Taiwan shows. Those who followed the training showed strengthened respiratory muscles, improved lung function, reduced breathlessness, and enhanced physical fitness over those who received…
Wayne Seward was diagnosed with generalized myasthenia gravis in 2024. (Courtesy of Wayne Seward) This is Wayne Seward’s story: I was officially diagnosed with generalized myasthenia gravis (gMG) in February 2024. However, my journey began a few years earlier with four symptoms: chronic fatigue, shortness of breath…
Joe Enders and his daughter, Jodi, smile at a Florida spring two months after her thymectomy surgery. (Courtesy of Joe Enders) This is Joe Enders’ story: When our daughter was diagnosed with myasthenia gravis (MG), everything changed overnight. Jodi was in crisis and could barely speak,…
Recent Posts
- Confronting loneliness and isolation in life after diagnosis
- Reclaiming His Voice: A Pastor’s gMG Story
- 10 things I wish I knew after my diagnosis of myasthenia gravis
- My challenges in life due to MG are causing some pre-marriage jitters
- Study comparing key gMG treatment options finds similar efficacy