The U.S. Food and Drug Administration (FDA) has approved the expanded use of Soliris (eculizumab) for treating children with generalized myasthenia gravis (gMG), ages 6 and older, who are positive for antibodies against the acetylcholine receptor (AChR). The infusion therapy marketed by Alexion, AstraZeneca Rare Disease was…
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Rituximab can safely and effectively control myasthenia gravis (MG) in patients with antibodies against muscle-specific kinase or MuSK, according to a new analysis. “Rituximab has demonstrated effectiveness and safety as a treatment for anti-MuSK MG. It has the potential to help patients with any baseline severity, especially those…
The National Organization for Rare Disorders (NORD) is seeking participants for its survey-based study Living Rare, which aims to better understand the real-world lived experiences of people in the U.S. with rare diseases. Living Rare, the first large-scale study of its kind in the U.S., seeks to capture the…
People with myasthenia gravis (MG) who have more severe disease when they are diagnosed, are older at its onset, or have a thymus tumor are at a higher risk of myasthenic crises, a study from Southwest China indicates. According to the researchers, “the results underscore the critical importance…
Note: This story has been updated March 6, 2025, to correct a quote from Mindy Henderson, MDA vice president of disability outreach and empowerment. The Muscular Dystrophy Association (MDA) is once again hosting its annual gathering, the MDA Clinical & Scientific Conference. The 2025 event will take place…
Tacrolimus, an immunosuppressant sometimes used off-label to treat adults with myasthenia gravis (MG), eased symptoms of the disease in about four in every five children with juvenile MG, with few side effects. That’s according to a meta-analysis of nine studies from China and Japan, which also found tacrolimus…
High levels of lactic acid in the bloodstream immediately after surgery to remove the thymus gland were associated with an increased risk of postoperative myasthenic crisis, or POMC, among people with myasthenia gravis (MG), a study reveals. “These findings offer valuable insights for clinical decision-making and monitoring of prognosis…
People with more severe myasthenia gravis (MG) have a greater likelihood of experiencing episodes of exacerbation, when symptoms worsen or reappear, and may need more medical care, according to the findings of a new study. The study also suggested that personalized treatment for these MG patients may ease the…
Myasthenia gravis (MG) may be more likely to begin manifesting in the summer, with the onset of symptoms more common in hotter weather, according to a new study by researchers in Italy. The team theorized that the increased incidence of MG may occur because temperatures at that time of…
A 39-year-old woman with severe myasthenia gravis (MG) associated with a thymoma, a thymus tumor, responded favorably to treatment with Ultomiris (ravulizumab), according to a case study from clinicians in Greece. The treatment successfully managed the woman’s rapidly evolving symptoms in the acute setting. The patient later underwent…
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