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During my most critical year with myasthenia gravis, I spent an inordinate amount of time in the emergency room and on various hospital floors. A good deal of the ER staff soon got to know me by name and, while clueless as to how to help my rare but potentially deadly…

I am approaching my 25th birthday, and due to my poor health, I have had to extend my studies a few times. This has contributed to both the academic success I have maintained and the grief of not graduating with my classmates. As a lover of all animals, I decided…

When I was diagnosed in 2004, it was a shock to my entire family. We had never heard of this disease and had no idea what it meant for my future. I had to take a year off school due to hospitalizations, treatments, and a thymectomy. I felt like…

I have always believed that we can either allow our circumstances to shape us or we can shape ourselves to better deal with our circumstances. There are few experiences in life that we cannot learn from — we just have to be willing to learn those lessons. The latter is…

Cannabis is illegal where I live, meaning my first interaction with it was also illegal. I do not pride myself on that fact. Actually, it has been the root of a lot of shame in my past. Finding relief in something that many perceive as a “gateway drug” never quite…

Recently, I was chatting with some of the other ladies in my support group who have been on a similar path as me — constant hospitalizations and relapses. They have also been through the heartbreak of having yet another treatment not work and the uncertainty of their future, health-wise. We…

Guilt is a well-acquainted friend for anyone living with myasthenia gravis. Poor health often means that our participation is limited, our range of executable activities are restricted, and our energy levels sometimes feel non-existent. This does not only affect us but also those closest to us, and that is where the…

A huge part of learning to live with myasthenia gravis is figuring out what triggers symptom flare-ups. This is a very personal journey of understanding your body and learning to listen to the subtle cues it sometimes sends to take it easy. These cues can be anything from heavy-feeling eyes, voice…

Myasthenia gravis often requires me to adapt my expectations or approach in several ways. One aspect I am currently struggling with is the paradox of cyclosporine, which eases my symptoms but also introduces some unforgiving side effects. Before starting cyclosporine as my long-term immunosuppressive treatment, I was considered…

You never imagine that your life could change in an instant. You never imagine that your “normality” can get turned upside down and spun around like it’s been let loose in a washing machine. You never imagine that you will be told by doctors that they don’t know what more…