Jodi Enders, an MG patient advocate, shares why speaking up, personalizing your care, and building a strong doctor-patient partnership can make all the difference in your MG journey.
Transcript
Reevaluating your MG care plan is super critical. You know, you’re always changing. So are your MG symptoms.
It’s always dynamic. It’s not fixed, it’s fluid. And you want to respond with holistic care that considers all the aspects of your health. You’re changing health, your aging, different things that are going on in your lifestyle that is changing. All that should always be considered.
So you should routinely be with your doctor, adjusting your plan as symptoms shift. But also as your lifestyle shifts, as your goals shift, as you find new triggers and identify new triggers.
Your health should even change with your priorities. I plan to have a pregnancy in the future, so that’s always in the discussion with treatments. Thinking ahead, just always having that open communication with your doctor about what’s working, what’s not.
And you definitely want to make sure that it’s not a copy-and-paste thing. You don’t want a doctor just applying what they did with their past patients for you.
You want to always feel like your individual health is being considered when your doctor is making choices for you, and you should be involved in those decisions as well, and feel confident that your healthcare is caught up with how your health is changing and shifting over time. This will just ensure that you proceed in your MG journey feeling confident, stable, comfortable.
The last thing you want is to have no faith in your healthcare team because with MG, some treatments are a waiting game — whether they’re going to take effect. And that’s already stressful.
It’s already stressful to wait for symptom improvement. You just don’t want to go every day just always just like, you know, holding on to that like fear of is it not going to be right? But we can have that confidence in trust that we are with quality care.
