Sarah Bendiff, diagnosed with myasthenia gravis in 2019 after 13 years of unanswered symptoms, shares how her partner supports her by listening, respecting her independence, and allowing her to make her own decisions. Read her column “My Bitter & Best Friend: MG.”
Transcript
The most important thing for me — actually, I have wrote a column about it — was he just listens, and he doesn’t act before asking me if I want that or not.
So, sometimes I look tired when I walked, and it’s just like, “Do you want to take a rest?” And he just doesn’t impose it to me. At first, he was imposing rest, the plan, and it was like, “It’s OK. It’s OK. It’s good for you.” Then he just stopped doing that because it was frustrating to me, and I am still able to make my own decisions.
So, I say someone who truly listens and just doesn’t force their — their vision of MG on it. Just let us leave it the way — the way we do.
