Sarah Bendiff, diagnosed with myasthenia gravis in 2019 after 13 years of unanswered symptoms, shares how her relationship has adapted to prioritize rest, understanding, and quiet support. Read her column “My Bitter & Best Friend: MG.”
Transcript
It actually defines all our dates. Because we only meet in very calm and resting places.
We always choose either restaurants or activities where I don’t walk, don’t move. I guess we might never plan for a gym date, but it’s fine.
We learn to live with it, and something cute is that, he always carries water and coffee in his bag. To help me. And, he never tells me that he has them until I feel tired and he’s like, “Tada, I got that.”
