Unmasking Myasthenia Gravis — Rebekah Dorr

The house is quiet past midnight, yet I’m fully awake as usual, thanks to my many health issues. Nighttime is when everything comes alive for me — chiefly my pain and other symptoms, but…

Having a rare disease opens the door to many questions. It also presents the opportunity for well-meant advice that doesn’t always help the way it’s intended.  I get it — when you hear…

Having a sense of purpose is innate to the human experience. It gives us direction, satisfaction, and motivation in the present as we build for our future. Purpose drives innovation, invigorates passion, and stirs the…

Hope is an empowering word with an ambiguous interpretation. For each person, hope might look just a little different, but its crucial need in our lives remains integral.  When I was first…

The diagnostic process and the journey to correct a disease by effective treatment can seem linear on paper. The reality rarely matches up. In that reality, many with myasthenia gravis become aquatinted…

Myasthenia gravis (MG) is nothing short of fickle. We are unwelcome companions, thrust into its foibles and constrained by its unpredictable nature.  Subsequently, MG has made my life an uncertain seesaw. In…

Life is filled with the impatient burden of waiting as we eagerly look toward important milestones, big events, and even the outcomes of the unexpected — both good and bad. And while we…

Chronic illness holds a lot of bittersweetness in its grasp. It takes away, and it gives. It teaches, and it humbles. One of the best opportunities it offers is the chance to give…

Once upon a time, I was healthy and vibrant, reveling in the promises of the future. There is something so delightful about the naivety of youth. It is unspoiled and untainted by the stains…

One of my closest friends, a fellow MG warrior and mom to an MG teen with juvenile arthritis, told me tearfully one day about how her daughter never got to “ring the bell.” You…