The Myasthenia Gravis Foundation of America (MGFA) is introducing a helpline to assist those living with myasthenia gravis (MG) and their caregivers understand and cope with the autoimmune neuromuscular disorder. The helpline — 1-833-647-8764 (1-833-MGSTRNG) — is initially open from 9 a.m. to 8 p.m. EST Monday through…

Spanish-speaking patients living with myasthenia gravis (MG) — and their caregivers, family members, friends, and anyone else seeking to learn more about the rare neuromuscular disease — are invited to join in the next meeting of the Virtual International Spanish MG Support Group, or Miastenia Gravis Grupo de Apoyo,…

Life with myasthenia gravis (MG) often means finding new ways to do things that used to be easy but now are more challenging. In a workshop at the MG Foundation of America (MGFA) National Patient Conference, a group of panelists discussed how MG has impacted them, and shared some…

For people with myasthenia gravis (MG) and other chronic diseases, it’s important to be proactive in learning how to best manage the condition and connect with others in the disease community. “The first thing I really need to let you know is that you’re the only person who can…

The Myasthenia Gravis Foundation of America (MGFA) has partnered with Alira Health to relaunch a patient registry for people with myasthenia gravis (MG) that “capitalizes on technological advances,” the nonprofit announced. The initial registry was launched in 2013. The rebranded MGFA Global MG Patient Registry is…

With the goal of raising funds and awareness to improve care and find a cure for myasthenia gravis (MG), the Myasthenia Gravis Foundation of America (MGFA) is hosting the 2021 Coast-to-Coast Walk and 2740 Challenge on Nov. 13. The event, which will be held virtually this year,…

From contributing to an interactive activities map to taking up challenges and advocating for local proclamations, supporters are set to mark Myasthenia Gravis Awareness Month, held each June. The aim is to raise global awareness among the general public, as well as among policymakers, public authorities, industry representatives, scientists, and…

A panel of 16 international experts has updated and expanded the recommendations for best management of myasthenia gravis (MG), based on the latest evidence in literature. “Some wealthy countries have established their own guidelines, but most of the world cannot do that,” Gil I. Wolfe, MD, chair of the…

For more than four decades, comedian Jerry Lewis hosted the MDA Labor Day Telethon on behalf of the Muscular Dystrophy Association. That annual event helped the MDA become the nation’s largest non-government source of funding for neuromuscular disease research, with more than $1.4 billion disbursed since its establishment 68…

Topline results from a Phase 2 trial of  Ra Pharma’s zilucoplan (previously known as RA101495), a potential self-administered therapy for patients with generalized myasthenia gravis (MG), showed a statistically significant decrease in markers of disease severity, achieving both its primary objectives. All the trial participants completed the 12-week treatment; 98 percent of…