“Is there anything I need to know to help you in an emergency situation? What does an emergency look like for you?” A client of mine recently asked me those questions as we chatted before getting to work. She had come into The Nook, a shared workspace I run,…

Myasthenia gravis (MG) affects 20 of every 100,000 people, according to the Myasthenia Gravis Foundation of America (MGFA), which is working to help educate the public about the rare disorder as part of this year’s MG Awareness Month. MG typically affects women under the age of 40 and…

It’s difficult to explain to a 20-something in perfect health why raising rare disease awareness is important. However, I had just turned 20 when my entire life was turned upside down by a myasthenia gravis (MG) diagnosis. Illness does not discriminate — anyone can be affected by it at…

When I discuss myasthenia gravis with new acquaintances, I usually get shocked faces and confused looks. I don’t blame them — MG isn’t exactly one of the most well-known rare diseases. I would even say it’s the Jan Brady of rare diseases: It’s always been there, but no one…

From contributing to an interactive activities map to taking up challenges and advocating for local proclamations, supporters are set to mark Myasthenia Gravis Awareness Month, held each June. The aim is to raise global awareness among the general public, as well as among policymakers, public authorities, industry representatives, scientists, and…