Why I Am Not ‘Better’
When I see someone for the first time in a while, they sometimes ask me if I am better. I have to pause before answering. Being chronically ill means that this is a long-term…
Positively MG – Megan Hunter
Megan Hunter is a Myasthenia Gravis Warrior, wife, friend, and fur-mum. She loves to read, crochet, sleep and find the good in every day. Megan always tries to find the silver lining!
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I Got Tested for COVID-19 — Here’s What It Was Like
I started coughing last week. Really coughing. The kind that hurts your ribs after a while, and wakes you up during the night. It’s the kind of cough that makes people move away from…
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An Embarrassing Moment Reminds Me How Lucky I Am
Lately, I have been pushing myself beyond my limits. While I’m aware of this, I don’t want to miss out on anything. We recently moved, confronted major life events, and have been crazy busy at…
I’m Living My Best Life
When you live each day unsure if it will be your last. If you fear that the next time you walk outside and look up at the sky to feel the sun’s warmth on…
Finding Happiness in the Midst of Sickness
This past weekend, I attended my doctor’s “special patient day,” a morning event with tea, snacks, and entertainment by local musician Joshua na die Reën. The staff from my doctor’s office was there, including the nurses who…
Finding the Right Doctor Is Key to Good Long-term Care
Choosing your healthcare provider can be as important and daunting a challenge as finding your life partner. You need someone who will advocate for you and who has your best interests at heart. You…
My Animals Are More than Pets
My husband and I have a cat and two dogs because I believe no home is complete without pets to love. Our animals sleep in our bed and come along on family trips —…
The Lost Stem Cell Transplant Hope
What do you do when told there is a treatment that could put you into remission, but your health insurance denies it because there “isn’t enough clinical evidence”? There will never be enough clinical evidence…
Take Time to Appreciate and Thank Those Who Provide Care
This past week, I was lucky enough to attend the RareX 2018 Conference organized by Rare Diseases South Africa. It was a chance for healthcare professionals, support groups, and patients to meet…
The ‘Weight’ of Being Sick
Before my diagnosis, I was perfectly healthy. Even childhood ailments like chicken pox or mumps didn’t inflict me. In fact, I had never even had the flu! I was an extremely active girl and am…
Reaching Milestones While Living with Myasthenia Gravis
This year I turned 30. For most of my friends, their 30th birthday meant they could have a big party and use it as an excuse to get together. For me, it was more…
How to Help Your Myasthenia Gravis Friend During His or Her Hospital Stay
When you first get sick, it’s difficult to keep up with the number of cards, bouquets of flowers, and hospital visits you receive. Every day someone comes to visit you in the hospital, and…
The Importance of Finding Your Tribe
At school, I wanted to belong to the “cool crowd.” I used to watch them from the outside and was so jealous of the way they seemed to glide around school, owning every little…
