Every December, I perform a painful yet cathartic ritual: I find a quiet time free of intrusions and, with a glass of killer eggnog, sit down to listen to the musical “Les Misérables.” While doing so, I’ll recall events that occurred more than 30 years ago, which brings on…
Vyvgart (efgartigimod) generally is safe and leads to both significant symptom reductions and improvements in function in people with hard-to-treat generalized myasthenia gravis (gMG), according to a real-world, single-center study in the U.S. These results, the researchers say, “[provide] further support for the use of [Vyvgart] in clinical…
Myasthenia gravis (MG) caused by the presence of self-reactive antibodies targeting muscle-specific kinase (MuSK) affects mostly women in Japan, leading to generalized muscle weakness, particularly in the face and neck, a study reports. About half of 50 study patients had refractory MG, meaning they failed to respond to standard…
How well do you really know your partner? Do you know their food or medication allergies? How about their favorite color? Can you rattle off the things that drive them nuts, both in a good and bad way? If they regularly take medications, do you know which ones? If…
Treatment with intravenous immunoglobulin (IVIG) during pregnancy may have helped ease symptoms of a fetal disorder in a girl born to a mother with myasthenia gravis (MG), according to a report from Germany. The woman’s firstborn had developed severe FARAD (or fetal acetylcholine receptor antibody-related disorder), which occurs…
Among people with myasthenia gravis (MG) living in Australia, women and seronegative patients — those whose tests fail to show MG-associated antibodies — reported a significantly higher disease toll in an online survey. This toll included a greater range of disease symptoms, earlier disease onset, longer waits…
Thanksgiving is a time to celebrate the past year’s blessings. It’s also a time to express gratitude for the people and things that make our lives meaningful and joyful. However, for some people, Thanksgiving can be a difficult and painful occasion. Those with chronic illnesses may feel isolated, depressed, or…
Kyverna Therapeutics’ investigational cell therapy KYV-101 safely and effectively improved muscle strength and reduced fatigue in a woman with severe, hard-to-treat generalized myasthenia gravis (gMG), according to a case report. The patient was treated based on an individual case evaluation and outside of a clinical trial. “This groundbreaking…
“How do you do it?” I’m asked this question a lot by friends, family, and even new acquaintances. I have myasthenia gravis (MG), so the topic usually comes up in conversation. After small talk, I’ll often end up explaining MG and how it affects me. The question usually follows…
My earliest school memories revolve around reading class. I couldn’t wait until after lunch, when we’d get out our books and take turns reading. I loved Dick and Jane, Sally, Mother, Father, and of course, Spot. I began a love affair with the written word that continues to grow…
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