Forum Replies Created

  • Rick B

    Member
    January 14, 2022 at 9:29 pm in reply to: MG Dentistry Precautions

    I am about to have extensive dental work done.  Does anyone else have experience with that and can you discuss your experience.

  • Rick B

    Member
    December 29, 2021 at 9:14 pm in reply to: Summary of IVIG Side Effects

    Soon I will be starting IVIG treatments.  I have read where a potential side effect is blood clots.   Does anyone have any knowledge/experience related to this? I have very serious coronary artery disease so blood clots are a real concern to me.

  • Rick B

    Member
    December 3, 2021 at 9:43 pm in reply to: Ocular MG – Hacks, tricks, tape, etc?

    I have double vision and was recently prescribed Fresnell prism press-on lens.  It is a soft piece of plastic that sticks like a decal to one of my eye glass lens (I wear eye glasses).  The lens immediately corrected my double vision and I can finally drive again.  I took a prescription from my ophthalmologist to an optician and was ready to go in 15 minutes. It cost only $30.00 (although I received much higher quotes from other opticians so shop around; and not all opticians sold them). If you don’t wear glasses I am sure an optician can sell you glasses with plain plastic lenses. I tried glasses with the prism inside the lens but that cost hundreds of dollars and made my double vision worse. Try the press-on lens first.

  • Rick B

    Member
    October 29, 2021 at 8:29 pm in reply to: Chemical exposures and MG

    I too was exposed to chlordane, a pesticide, many years ago. I had no symptoms at that time  but now wonder if it is related to my recent diagnosis of mg.

  • Rick B

    Member
    September 22, 2021 at 7:35 pm in reply to: Gabapentin for Nerve Damage – Myasthenia Gravis

    I have been taking gabapentin for anxiety and depression for many years.  I was diagnosed with ocular mg in January. I have been taking 300-400 mg of gabapentin daily since then. No apparent effect on the mg but I think I’ll cut back on the gabapentin to see if my vision improves. I am thankful that only my eyes have been effected. Thank you for bringing up this topic…