[Ms.Will]

Hello,
Yes it definitely will help with the fatigue and weakness. As you become more in tune with your body you may find yourself like some of us, being able to spot signs before an episode, flare up, or what I call a ruined rest of the day.
In response to the other post, it is short lived but if you have a good neurologist, after your EMG, they should be able to get a good action.

MG is unpredictable so it may take a bit of time, but hopefully it will get a bit better for you.

[Ms.Will]

I was diagnosed in 2019 and surprisingly, it was my PCP who was concerned enough to refer me to a neurologist.  She was so puzzled by my sudden symptoms and kept assuring me that she wouldn’t stop and kept researching and even talked to her team before feeling comfortable enough to refer me with supporting symptoms.  Neurologists can be tricky sometimes.

She made me feel reassured that I wasnt going crazy and something was wrong instead of brushing me off.

Her referral sent me to some of the nicest doctors I have ever had.  Because my situation is so unique and I’m not a typical MG case patient they see and I have other autoimmune issues, my case is part of the research group here in Colorado.

It been refreshing when doctors pay attention like they are supposed to and genuinely care about getting you better.

[Ms.Will]

I was diagnosed with MG about four years ago.  I was on Muran for two years and have been on Mestinon the whole time.  I finally received the ok from my doctors in the fall that getting the vaccine and possible side effects were a better issue than not having a vaccine and catching COVID.

I received my first Moderna dose in September and only had a sore arm for a few days.  My second one gave me aches,  chills, and a headache.  I was very fatigued. This lasted for a day.

My 3 dose, in anticipation of feeling like crud, surprised me and it wasn’t as severe as the second.

I am glad my doctors delayed giving me a decision right away because I wasn’t comfortable in getting it since there wasnt enough literature for the effects of MG patients in the beginning.

I think the side effects really depend on how MG processes in the individual.

[Ms.Will]

Dysphagia.  I had my esophagus dialated four months ago and my vocal cord injected.  I’m wondering if the dialation could turn into a common procedure or if its something anyone else has gone through.