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Gastroparesis & MG?
Hello,
I have gMG. I had a thymectomy in 2022 with removal of thymoma. My symptoms are mostly controlled with medication. On bad days I’ll lose balance, have difficulty speaking, and choke often but otherwise ok. I recently had severe abdominal pain following a relatively small dinner. It felt like it was all stuck in my stomach and esophagus. It lasted several hours with lingering discomfort. In retrospect I often feel overly full after only a few bites of food, especially on very hot days or exhausting work days. Does anyone else experience this? Can it be MG related? Any suggestions? Thank you!
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6 Replies
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I lost 60 lbs and my be what you mentioned. At one time I could not eat 1chiken wing because i felt full and couldn’t eat. Have you found anything to help w/that?
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I tend to eat small meals with minimal protein, a small starch (baked potato) and/or salad/veg). Light snacks in between. It seems to work for me. I add poultry and seafood which digest better than meats and minimal breads. My daughters are health coach’s and dietitians so I have good resources.
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Sorry for the long post/read ………Well, I don’t come on here much or a lot and I’ll tell you my eyes glow when I seen the word gastroparesis and MG!!! OMG! The Hell, I have been through in the last year and a half and gained almost 70 pounds in that time, constantly complained that I couldn’t eat I was always severely bloated, Looked 9 months pregnant, pain so much that I was in the ER almost all the time and they did nothing for me. Kept saying it was all a pain so much that I was in the ER almost all the time and they did nothing for me. Kept saying it was all anxiety, ( grrr ) Starving but everything would just sit in my upper stomach and hurt like hell!! Well FINALLY FINALLY THANK THE LORD God, an answer, and it was indeed gastroparesis!!! I also wasn’t getting better on the Linzess. They put me on. And all the laxatives in the world would not let me go and yet I used to always have severe diarrhea., but this all started after I had my gallbladder out! Just last week I did another test because nothing was working that was called SIBO and I came back positive with high levels of methane in my stomach on top of the gastroparesis! Let’s just say Ins. won’t pay for the meds. I need to cure it and I’m still sitting here miserable.!! so to answer your question YES gastroparesis and MG! my neurologist was wondering if it meant my stomach/intestine muscles were causing it. That we don’t have a positive answer on, but at least I finally got an answer. I’ve even lost a couple pounds. I can’t wait. for the day I can eat I’m so hungry and yet normally you lose weight but due to The constipation and SIBO IS CAUSING THE WEIGHT GAIN!
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I’m sorry for your issues with MG! I have had bloating on few occasions but nothing like your problem and pain. I think the medical field I.e neurologists/researches need to look at other muscles that are possibly disrupted by MG like the digestive system! I have some cycles of diarrhea and constipation because of my meds, especially if I don’t eat something when taking them but I don’t always do it.
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I was diagnosed with MG around the same time I was diagnosed with SIBO and Hemochromatosis back in 2019. It was miserable times ALL the time. Thankfully, I was recommended to a nutritionist who catered a LOW-FODMAP diet for me. I have other food issues besides the SIBO, so I do have to omit some of the options, but it has made a huge difference. I stand by it to this day.
It also helps that by omitting those triggering foods completely I was able to determine which ones caused the swallowing issues I had as well as the tummy problems.
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Thank you all for your responses. One significant challenge for me with gMG is always questioning if the new symptom is all in my head. Knowing we are struggling together makes me feel less alone and less scared. I’m learning to just stop and rest in a cool environment when these episodes happen, until my body resets. I think our shared experiences are ahead of what Drs have discovered or documented. I wish you all continued strength and healing.
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