Suzanne E

Hi,

I’m happy to share my story if you still need contributors. Along with MG, I’ve developed another autoimmune disorder, POTS / dysautonomia, gastrointestinal issues, and several chronic overlapping pain conditions.

I got the flu ‘& Covid bivalent booster (Moderna) on the same day in September. I wish I’d spread them out because they really knocked me on my behind. I haven’t had any issues with any of the 5 Covid shots, except some soreness at the injection site (massaging immediately after helped) and symptoms that mimic allergies / histamine reaction (cong…[Read more]

I can definitely see the impact of smoking on my blood pressure / cardiovascular system, but it doesn’t affect MG for me. I only started smoking because I developed fibromyalgia about 6 months before the onset of MG (I had a positive ANA before studying abroad in Egypt — after that my body quickly fell apart, but it was a perfect storm /…[Read more]

I’m really sorry to hear this development — autoimmunity is awful. However, while it is rare to have both Hashimoto’s (which I too have) and Graves, I know several people with both. Perhaps becoming more common with more endocrine disrupters in our environment.

I am very fortunate to still be in the “Last Longer” club — thanks to living alone,…[Read more]

I think it’s critical that these studies state the specific material that is being smoked — tobacco is miles removed from cannabis. I’ve never smoked tobacco and haven’t had much exposure, aside from living in Cairo for 2 months (air is basically saturated with tobacco) leading up to the onset of MG at age 22; however, my mom’s father smoked…[Read more]