• Jodi Enders

    Moderator
    July 8, 2024 at 12:16 pm

    This is an interesting question that I could not locate any research about. Your statement “pick up the ptosis earlier vs too late,” do you mean when people initially developed the symptom ptosis, or how long it takes people to notice when they experience ptosis before they decide to rest?

    – Jodi, Team Member

    • Anne-Marie

      Member
      July 8, 2024 at 3:13 pm

      The latter. Not only rest but medicate with Mestinon

  • Ms.Will

    Member
    July 10, 2024 at 3:18 pm

    Hi there,

    If I start feeling extremely fatigued, I pay attention to my eyelids more than normal to see if and how fast the ptosis happens. My fatigue may or may not trigger it. As soon as I notice, I’ll rest and take the Mestinon. If I wait too long and allow my eyelids to really go, it takes longer for me to recover.

    • paul spychalski

      Member
      July 10, 2024 at 4:56 pm

      Pyridostigmine and a small dose of Prednislone works for me.

Log in to reply.