• The impact of diet with Myasthenia gravis

    Posted by Jodi Enders on April 14, 2025 at 7:00 am

    As we navigate the challenges of living with Myasthenia Gravis, we must explore how our diet might influence our symptoms and overall well-being. I’ve personally experimented with various diets, including pescatarian, vegetarian, and vegan, to see how they differently affect my MG symptoms and energy. I am curious about your experiences with diets and MG.

    Have you tried any specific diets or made dietary changes to try and manage your MG symptoms or energy levels? If so, what motivated you to make those changes, and what has your experience been like?

    Are there particular foods you’ve found beneficial, or on the contrary, foods that seem to exacerbate symptoms?

    Jodi Enders replied 1 week ago 6 Members · 6 Replies
  • 6 Replies
  • lin

    Member
    April 27, 2025 at 4:39 pm

    I have totally revamped my diet to clean cooking, attempting to use only fresh products and avoid processed foods. Over the course of 8 months I’ve lost 25 lbs. I also slowly began going to gym to help strengthen my muscles. I feel great, less days of pure weakness and my balance has improved.

  • paul spychalski

    Member
    April 30, 2025 at 9:41 am

    I lost 70lbs in the last year and a half. Why?

  • Amy Cessina

    Member
    May 2, 2025 at 8:41 pm

    I only eat food I cook and a soft diet also. I belong to an organic farm. I can’t eat too much salad or tough greens it is hard to swallow. Don’t drink and exercise most days.

  • Ms.Will

    Member
    May 7, 2025 at 7:49 am

    I have SIBO and other food allergies as well so its difficult sometimes to find the right balance of nutrition without issues because I can no longer enjoy my favorite spices. I’m considered a flexitarian which consists of a mostly plant-based diet with chicken, turkey, fish for protein. I’m also gluten-free.

    I can say though, that my energy changed dramatically with this food alteration and I have very minimal swallowing problem since most of my food is on the softer side.

  • Sharon Haw

    Member
    May 9, 2025 at 10:29 am

    I have noticed more energy from certain fresh foods – fresh blueberries are the most noticeable so I have them everyday at breakfast. I only supplement with Vitamin D. I try to get all my nutrients from mainly fresh and home prepared foods but dang all that chopping and prep is tiring at supper time so I cook larger quantities to cover several meals and freeze leftover meat in portions for salads, wraps, sandwiches. I track & balance nutrient content by logging foods in an app – I use the My Fitness Pal app but would be interested in hearing what apps others use.

    • Jodi Enders

      Member
      May 12, 2025 at 8:22 pm

      Love this! Fresh blueberries are one of the best superfoods. I feel you on the chopping, I invested in a sharp knife and keep it sharpened, and if I am smart enough to remember, I put on safety gloves. Prepping in batches and freezing portions is also a go-to for me. I have tried MyFitnessPal, but I have trouble keeping up with the habit of food tracking. For the minerals and vitamins that are not in foods I typically eat, I have been lately going a couple minerals and vitamins at a time and trying to make those foods a habit of eating routinely. Then, I focus on more once I have built the habit. I’m curious to see what others are using also.

      – Jodi, Team Member

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