Questions on side effects and not doing treatments
Ive been wondering if there might be anybody like myself that has had bad reactions to medications/treatments? To the point you just aren’t using anything and just trying to modify life around mg. I am super sensitive to everything and have had allergies to antibiotics, foods and chemicals my whole life. I didn’t do well on mestinon and I ended up in hospital on IVIG which I had to be pulled off of because even that caused a reaction and then oddly my red blood cell counts were off and I seemed to be thrown into menopause.
My mobility has been effected to the point I use a wheel chair at some point most days or cane. An improvement however when I came home from the hospital I could barely stand on my own. I am doing better most days but have been feeling a flare coming on so I’m hoping I’m wrong on that. I’m really at a loss at the treatments. The disease is bad but then the side effects. I’m at a loss with it.
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