@lslack39
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Larry Slack started the topic Are there financial resources to help with the high costs of MG care? in the forum Myasthenia Gravis Research, Scientific News, & Clinical Trials 3 months, 3 weeks ago
My Neuro has started me on a series of Rituximab infusions. 2 infusions 2 weeks apart and then another 2, 6 months later. The cost per infusion is $25,927. My UnitedHealthCare Medicare Advantage insurance pays $4,080.21 leaving me with out of pocket expense of $1,052.73. I live on Social Security and a monthly draw on my IRA. I’m not financ…[Read more]
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Larry Slack replied to the topic Anyone with experience with Rituximab infusions? in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 5 months, 2 weeks ago
Thanks for positive feedback about Rituximab. Had first infusion on 12/7 and second will be 12/21. Haven’t experienced any improvement yet with my fatigue, but I’m hopeful.
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Larry Slack replied to the topic Anyone with experience with Rituximab infusions? in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 5 months, 2 weeks ago
Excellent, so glad you found relief with Rituximab. I had my first infusion Dec 7 and second one will be Dec 21. I’m hoping for less fatigue.
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Larry Slack started the topic Anyone with experience with Rituximab infusions? in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 5 months, 4 weeks ago
I was diagnosed with MG over 6 years ago and have gone through the standard protocols of Mestinon, Prednisone, IVIG, and Cellcept. My MG is manageable, but I’m having a lot of fatigue. Neuro has suggested Rituximab infusions, consisting on one session followed by second in 2 weeks, and then follow ons at 6 months. Does anyone have expe…[Read more]
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Larry Slack posted a new activity comment 5 months, 4 weeks ago
I was diagnosed with MG over 6 years ago and have gone through the standard protocols of Mestinon, prednisone, IVIG, and Cellcept. MG is manageable, but I’m experiencing a lot of fatigue. Neuro is suggesting infusions of Rituximab, start with one session, do a second in 2 weeks, and follow on at 6 months.
Has anyone had experience with R…[Read more] -
Larry Slack became a registered member 6 months ago
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Hey, Larry! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself with…[Read more]
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I was diagnosed with MG over 6 years ago and have gone through the standard protocols of Mestinon, prednisone, IVIG, and Cellcept. MG is manageable, but I’m experiencing a lot of fatigue. Neuro is suggesting infusions of Rituximab, start with one session, do a second in 2 weeks, and follow on at 6 months.
Has anyone had experience with R…[Read more]-
Hey Larry! These are several discussions with replies that individuals have shared about their experiences with Rituximab. https://myastheniagravisnews.com/forums/forums/topic/have-you-gotten-your-flu-shot/#post-20369, https://myastheniagravisnews.com/forums/forums/topic/steroid-alternatives/#post-20287,…[Read more]
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Hey Larry! These are several discussions with replies that individuals have shared about their experiences with Rituximab. https://myastheniagravisnews.com/forums/forums/topic/have-you-gotten-your-flu-shot/#post-20369, https://myastheniagravisnews.com/forums/forums/topic/steroid-alternatives/#post-20287,…[Read more]