@jennyt
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Jennifer Thompson replied to the topic Looking For 10 Individuals to Share Their MG Story in a Community Spotlight for Myasthenia Gravis Awareness Month (June) in the forum Additional Resources 1 week, 6 days ago
I will add my story as well. I have overlap conditions as well.
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Jennifer Thompson replied to the topic Pyridostigmine Side effect or allergic reaction? in the forum Healthcare and Myasthenia Gravis 2 months, 3 weeks ago
Thank you for all of the responses! I am taking 1/4 tablet at a time… seasonal allergies can confuse what’s going on but I think it’s going ok.
I went from no medications to IVIG and they are trying to get vyvgart approved and now my neuro told me he really thinks Cellcept would help toward remission. I was trying to avoid Cellcept or Imura…[Read more]
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Jennifer Thompson replied to the topic Pyridostigmine Side effect or allergic reaction? in the forum Healthcare and Myasthenia Gravis 3 months ago
What manufacturer did you switch to? I wonder how many there are…
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Jennifer Thompson started the topic Pyridostigmine Side effect or allergic reaction? in the forum Healthcare and Myasthenia Gravis 3 months ago
I may have asked this before. I tried pyrogestimine last year and developed a raw burning mouth. I discontinued using it for 2 weeks and tried again and the same response. It’s not like it’s mildly sore, it’s pretty annoying/concerning. But once again after wanting some relief I talked to my neuro and they suggested 1/4 tablet to see what happe…[Read more]
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Jennifer Thompson replied to the topic Vyvgart side effects in the forum Healthcare and Myasthenia Gravis 3 months, 3 weeks ago
Thank you for the responses:) They are helpful. It sounds like a good decision to try this treatment.
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Jennifer Thompson started the topic Vyvgart side effects in the forum Healthcare and Myasthenia Gravis 4 months ago
Good Morning! My doctor is discussing Vyvgart with me and I am wondering about the respiratory and UTI risk? Has anyone experienced this happening? I know infection is a risk with a lot of treatments. I am just curious others experiences. Thank you!
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Jennifer Thompson replied to the topic What Are Your Goals for the New Year? in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 5 months ago
I think my biggest goal is to learn to meet myself where I am at. I am horrible at pushing it. I went from dancing, running and weights to coming home from the hospital in a wheelchair. I am now 8 months later still relying on a cane and a chair for long walking situations. I’ve come a long way and should be more understanding of myself. My n…[Read more]
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Jennifer Thompson started the topic Questions on side effects and not doing treatments in the forum Healthcare and Myasthenia Gravis 5 months, 3 weeks ago
Good afternoon,
Ive been wondering if there might be anybody like myself that has had bad reactions to medications/treatments? To the point you just aren’t using anything and just trying to modify life around mg. I am super sensitive to everything and have had allergies to antibiotics, foods and chemicals my whole life. I didn’t do well on mes…[Read more]
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Jennifer Thompson replied to the topic Mestinon Side Effects in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 1 year ago
Marcie, I to had similar issue with the mestinon tablets. Do you have the same side effects from the liquid?
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Jennifer Thompson started the topic Question about IVIG and blood clots. in the forum Healthcare and Myasthenia Gravis 1 year ago
Good Evening,
I have a am wondering if anyone has done IVIG with a blood clotting issue or that has had them in the past? I am researching treatment options and I was told prednisone which I really don’t want to go on along with cellcept. Or IVIG but I had a clot in the past and didn’t know if that might cause issue. I know no one can say of cou…[Read more]
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Jennifer Thompson replied to the topic Mestinon in the forum Healthcare and Myasthenia Gravis 1 year, 1 month ago
Thank you for so many great replies! I started taking it and began having a reaction of raw burning mouth and throat… like if you stick your hand on a stove but my mouth and throat. So I am waiting to discuss a possible plan B.
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Jennifer Thompson replied to the topic Mestinon in the forum Healthcare and Myasthenia Gravis 1 year, 1 month ago
Thank you for your reply! Very helpful and reassuring. I figured I would have more added down the road. I have my EMG next month. I am thankful for all the information available here.
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Jennifer Thompson started the topic Mestinon in the forum Healthcare and Myasthenia Gravis 1 year, 1 month ago
I was wondering as far as Mestinon goes does it help with the fatigue and muscle weakness? Also does it help deter a crisis? I’m trying to understand how it works and what all it’s supposed to be helping. Also I’m having winded feelings and hard times breathing at times when I eat. I explained it to my doc as not being able to breathe while I eat…[Read more]
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Jennifer Thompson replied to the topic New To Diagnosis and at a loss as to how to handle. in the forum Healthcare and Myasthenia Gravis 1 year, 1 month ago
Thank you all for your responses they are helpful!
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Jennifer Thompson started the topic New To Diagnosis and at a loss as to how to handle. in the forum Healthcare and Myasthenia Gravis 1 year, 2 months ago
Hello there, I was diagnosed over a month ago after about 2 years of “mystery symptoms” . I have multiple other autoimmune diagnoses but my primary thankfully ran the test for MG antibodies and we had an answer for the mystery. However I feel like I don’t have much of a grasp as how to handle it. I had my first appointment with my neuro…[Read more]
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Jennifer Thompson became a registered member 1 year, 3 months ago
Hello, Jennifer! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself…[Read more]