Myasthenia Gravis News Forums Forums Healthcare and Treatments New approved MG treatment for gMG – Vyvgart Hytrulo

  • marguerite-thibeau

    June 23, 2023 at 10:09 pm

    I was very excited about the idea of  a subQ Vyvgart, But I’m not as comfortable with the  additional drugs yet. I have MCAS and Chemical allergies so I will watch for a while. I had hoped to get the injection at a local Neurologist, saving 3 hours of driving and 2 hours in the infusion center. Also sparing my veins.

    • Joe

      September 1, 2023 at 6:20 pm

      Anyone here of octagam? I’m mg negative and my first infusion.

  • Angel

    June 25, 2023 at 9:16 am

    Thanks Jodi

    I will contact my doctor to find out.

    Please keep me posted

    Thanks again


    • minbran

      September 7, 2023 at 10:09 am

      My Neurologist is putting in the order right now. I did ask my Vyvgart Hytrulo case officer to have it done with my own Doctor(15 mins away, instead of 45 mins way at the infusion center) or indeed have it done at my own home. No go with my own Doctor(no doubt a money thing) and would have to get insurance to approve it being administered at home.

      The whole point of this is the fact that they always have a hard time sticking me, so a simple injection is wonderful not to mention the time saved. I gave my wife Forteo injections for one year, and you would have thought they could have got this organized by now, and yet It’s still all about who gets a slice of the green stuff in the end.

      Regardless, this will be my third series of Vyvgart and when I start, and finish will let others know how it went, but more importantly, how I did and the hopeful and continued improvement with my health would be nice.🥂

  • Debbie sandwra

    September 8, 2023 at 3:30 pm

    Vyvgart infusions didn’t work for me for very long. The 3-4 weeks off is the killer. Is it just me or do another people have a problem with the time off as well. And insurance won’t cover weekly no time off.

  • mark-palmer

    September 17, 2023 at 4:30 pm

    I’ve had two cycles of Vyvgard via IV. My results have been very good and have started reducing Prednisone. My next cycle will be Hytrulo.

    I’ve gone from 8 hours of IVIG given over two consecutive days, to 90 seconds/week for each of 4 consecutive weeks. Amazing.

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