@minbran
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John replied to the topic Treatment for Ocular Myasthenia Gravis in the forum Healthcare and Myasthenia Gravis 1 day, 22 hours ago
Matt, nobody has replied to you, so I will give it a go. I still have double vision(not as bad as before which was extreme) plus fluid now forming in my retina due to the steroids I’m told. On my second bout of vyvgart, just started, strength may have gained a little, but eyes the same. The second dose next week I hope will kick in. However, not…[Read more]
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John replied to the topic Tobacco and Myasthenia Gravis in the forum Healthcare and Myasthenia Gravis 6 days, 20 hours ago
Smoked for over 50 years, but gave up in January when diagnosed but had been wanting to do so for quite sometime. However, gone on to Vaping and I just don’t know if this will prohibit my recovery or indeed there is no way I can attribute smoking cigarettes to getting MG at such a late stage of my life.
I asked 4 different professionals re vaping…[Read more]
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John replied to the topic Treatment for Ocular Myasthenia Gravis in the forum Healthcare and Myasthenia Gravis 2 weeks, 1 day ago
Paul, you mention this…”This case left me with a case of central serous retinopathy in my right eye.”
Update please on this condition and has it improved for you, as this is what I have now also got. Fluid appearing in the Retina. I think on both eyes, plus a very small nodule appearing from a month ago when last tested at Bascom Palmer Eye…[Read more]
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John replied to the topic Treatment for Ocular Myasthenia Gravis in the forum Healthcare and Myasthenia Gravis 2 weeks, 1 day ago
Have there been any studies that show Vyvgart can improve Double Vision?
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John posted a new activity comment 3 months, 2 weeks ago
I see many here joining and asking questions and advice like myself but with no replies and yet so much useful information and thank you for that, so wondered if I am posting in the wrong forum as have asked a mod in pm plus two emails and yet no replies.. Perhaps I am being too presumptuous and apologize if so, but sure would appreciate some…[Read more]
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John posted an update 3 months, 2 weeks ago
Just noticed about 30 mins ago my left hand just suddenly got rigid and froze up, like a severe cramp and nothing worked….and
right now the right one after cleaning my iPad. Anyone else had this and what to do or expect,I have just been massaging it and now able to type this but both hands feel frozen sort of?And if anyone could look over my…[Read more]
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I see many here joining and asking questions and advice like myself but with no replies and yet so much useful information and thank you for that, so wondered if I am posting in the wrong forum as have asked a mod in pm plus two emails and yet no replies.. Perhaps I am being too presumptuous and apologize if so, but sure would appreciate some…[Read more]
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Hey John, my apologies for the delay in response. Thank you for your wonderfully written post. It only shows up as a reply to my welcome when you became a member. If you cannot find it, I have attached the response to the end of this message. To make a new post visible to everyone, visit this page, https://myastheniagravisnews.com/forums/. From…[Read more]
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John posted a new activity comment 3 months, 2 weeks ago
He Jodi, forgive the double post, just replying again, in case I posted to begin with in the wrong forum….
So I’m posting again and hope this is the right place? Mods, sent two emails to you and no reply, regarding which board is this suitable to post on and where if any the “New Post” button is? Spent a long time posting a few days ago and w…[Read more]
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Hey John, my apologies for the delay in response. Thank you for your wonderfully written post. It only shows up as a reply to my welcome when you became a member. If you cannot find it, I have attached the response to the end of this message. To make a new post visible to everyone, visit this page, https://myastheniagravisnews.com/forums/. From…[Read more]
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John posted an update 3 months, 2 weeks ago
So I’m posting again and hope this is the right place? Mods, sent two emails to you and no reply, regarding which board is this suitable to post on and where if any the “New Post” button is? Spent a long time posting a few days ago and when I clicked on post update, it just disappeared. So hope this goes through and very pleased to find this…[Read more]
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Hey John, my apologies for the delay in response. Thank you for your wonderfully written post. It only shows up as a reply to my welcome when you became a member. If you cannot find it, I have attached the response to the end of this message. To make a new post visible to everyone, visit this page, https://myastheniagravisnews.com/forums/. From…[Read more]
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John posted an update 3 months, 3 weeks ago
just posted a long thread but can[t see it?
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Hey John, my apologies for the delay in response. Thank you for your wonderfully written post. It only shows up as a reply to my welcome when you became a member. If you cannot find it, I have attached the response to the end of this message. To make a new post visible to everyone, visit this page, https://myastheniagravisnews.com/forums/. From…[Read more]
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John posted an update 3 months, 3 weeks ago
Hi everyone, not sure where to post this and trust mods place in the right forum and excuse some spelling mistakes but eyes not to good at present. Jan 7th woke up with one eyelid totally shut, next day the other half closed and speech slurry.went to my Optician wwhere in Feb and March 21 had catarcats removed and different eye didtances placed in…[Read more]
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Hey John, I just found your post. It was weirdly detected as spam by our automated security and accidentally was missed when marked posts were being approved. It should appear here now, sorry about that!
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Also, long posts commonly get marked as spam by our system’s automated spam detection. Although our team will eventually approve these posts, I recommend shorter texts to avoid this delay. You can always respond to the post as a comment and write “continued in comments” on the original post.
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John became a registered member 3 months, 3 weeks ago
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Hey, John! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Our wholehearted compassion goes…[Read more]
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He Jodi, forgive the double post, just replying again, in case I posted to begin with in the wrong forum….
So I’m posting again and hope this is the right place? Mods, sent two emails to you and no reply, regarding which board is this suitable to post on and where if any the “New Post” button is? Spent a long time posting a few days ago and w…[Read more]
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Hey John, my apologies for the delay in response. Thank you for your wonderfully written post. It only shows up as a reply to my welcome when you became a member. If you cannot find it, I have attached the response to the end of this message. To make a new post visible to everyone, visit this page, https://myastheniagravisnews.com/forums/. From…[Read more]
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Hey John, my apologies for the delay in response. Thank you for your wonderfully written post. It only shows up as a reply to my welcome when you became a member. If you cannot find it, I have attached the response to the end of this message. To make a new post visible to everyone, visit this page, https://myastheniagravisnews.com/forums/. From…[Read more]