Profile

Name

Jools

Nickname

jools

Short Bio

I’ve had Myasthenia Gravis for over 40years. I was diagnosed at the age of 16 in 1981. I was treated at Leeds Royal Infirmary Teaching Hospital in England, had a Thymectomy and used Mestinon as a single treatment. Lately I’ve had 2 Myasthenia Crisis and after a 5 day IVIG I am now on Prednisolone, Mestinon and Azathioprine. This is for speech, swallowing and chewing problems with some breathing difficulties also. Today……I’m getting there…👍

Year of birth

13th April 1965

Gender

female

Location

Edinburgh Scotland

Relationship

Patient

How did you hear about us?

Other

How long have you or the person that you are caring for had MG?

43 years

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